I am grateful for your generosity this year and excited to announce that we have surpassed our goal to provide support to PPMD’s Cardiac Initiative and commitment to ACTION, the Advanced Cardiac Therapies Improving Outcomes Network!
Your generosity will fund ACTION’s goal to optimize care and improve outcomes for those living with Duchenne-related cardiomyopathy. Your gifts will also support ACTION’s critical efforts to create the largest multicenter database on Duchenne cardiac care practices and outcomes to date.
This award to enable the expansion of ACTION’s Duchenne Muscular Dystrophy Project to the broader ACTION Muscular Dystrophy Initiative, marks a pivotal step in ensuring we protect the heart.
A special thank you to Dr. Chet Villa, Colin Werth, Kate VanderWeele, Emma Ridolphi, and John Killian for sharing their stories with us over the past several weeks. They, along with countless other families and healthcare providers, inspire all of us to keep pushing research and care forward in our fight to end Duchenne.
Our work would not be possible without this community that wraps us together in support and love. YOU are the strength of our collective heartbeat.
My utmost gratitude to every donor who supported us this holiday season, especially the following families and foundations for their significant contributions to this project: Michael’s Cause, Ryan’s Quest, John Owen’s Adventure, Ackerman Foundation, Hope for Gabe, and the Nicholoff Family.
My wish for 2023 is that it’s filled with love, hope, and progress.
Best wishes always,
Founding President & CEO
P.S. We made the significant investment to grant $2 million over three years to support ACTION. There’s still time to help PPMD’s Cardiac Initiative grow Stronger With Every Beat — if you haven’t already, make your tax-deductible gift today!