February 1, 2019 / Advocacy,Community

Register Today for PPMD’s 2019 Advocacy Conference!

The PPMD Advocacy Conference registration is live! Join us March 3-5 in Washington DC to advocate for Duchenne directly with Members of Congress. Our community’s presence in Washington has been critical in helping to move the needle in Duchenne clinical, research, and regulatory priorities. This March, we hope you will join us for several powerful and critical days, including a special event for the Monday of conference that will provide an opportunity to have federal agencies hear our voice as well. It’s a week in which we have the opportunity to make an indelible impact. Please join us!

Learn more & register

Basic Agenda

  • Sunday, March 3rd 3pm-7:30pm
    Advocate training (Mayflower Hotel)
  • Monday, March 4th, 9am-4pm
    Gene Therapy Policy Forum meeting (Mayflower Hotel)
  • Tuesday, March 5th, 9am-5pm
    Hill meetings – both House and Senate (Capitol Hill)
    PPMD will schedule your meetings on the hill

Gene Therapy Policy Forum

Hosted by PPMD, this policy forum will bring together regulators, companies, researchers and most importantly our patient community to start the process of sharing information on the current status of gene therapies in Duchenne, understanding areas of collaboration, building relationships, and setting expectations.

First Time Advocating?

Don’t be intimidated. Before you meet with your members of Congress, PPMD will provide you with extensive training and support, so you go into your meetings feeling empowered and prepared. You will also be traveling with your fellow Advocates!

Hotel Accommodations

Rooms are available at a discounted group rate of $249/night at the Mayflower Hotel, located at 1127 Connecticut Ave. NW, Washington DC, 202-347-3000. Reservations can be made online at this link or by calling the hotel directly and mentioning you are part of the PPMD block.

Learn more & register

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