When our son Seth was diagnosed, my husband Chris and I took very different approaches. He wanted to find out everything he could about Duchenne whereas I didn’t think I could handle any more information. I just wanted to hide. Then we met PPMD.

They immediately put us in contact with all the people we needed to know to begin addressing Seth’s medical needs. They helped us understand what research was out there, what trials our son could qualify for, and the best way for us to care for him. In all aspects, PPMD was a lifesaver.

Pat Furlong and the PPMD team showed us a way forward. Knowing that they are always thinking about every single person involved in the fight to end Duchenne, and how to elevate care for our kids, encourages us. Life with Duchenne got better after PPMD became part of our lives. That’s why today, Chris and I are asking you to donate to PPMD.

Only PPMD is looking at the full impact of Duchenne. They support promising therapies while ensuring our kids are receiving the best care possible to live stronger, longer lives. But PPMD can’t do it without your donation. Give now and help fund better todays and stronger tomorrows for the entire Duchenne community.

Without PPMD and their network of Certified Duchenne Care Centers, we wouldn’t have known about the clinical trial opportunities available to Seth. We’re fortunate – Seth has a more common mutation and has been able to participate in multiple clinical trials. But PPMD doesn’t just inform families about trials. They work tirelessly to improve the clinical trial process by exploring a platform trial design that could minimize the use of placebos. They empower families to report their day-to-day Duchenne experience with innovative enhancements to the largest, most comprehensive patient-reported registry for Duchenne. This helps providers and companies better understand the disease and inform the architecture of future trials. And they are working to insist on standardization of measures so that those trials are successful.

Seth is doing amazingly well. I attribute that to God and to all of the people that are associated with PPMD – the doctors, clinicians, care providers, and researchers. PPMD has connected us with the best of the best. They taught us what we need to know so that we can provide our son with the care and the opportunities he deserves and that all of our children deserve. I don’t even want to think about where we would be without PPMD.

Every family’s journey is different, but thanks to PPMD we have had unexpected opportunities, met the most incredible people, and come together as a family in ways I never could have imagined.

This holiday season, join us in donating to an organization that has been the strength of this community for 25 years, so that together we can continue fighting to end Duchenne.

Merry Christmas and Happy Holidays from my family to yours!

Tammy Cate
PPMD Parent & Connect Coordinator (TN)

P.S. PPMD is making today better for my son Seth and everyone living with Duchenne. Donate now to help PPMD make tomorrow even stronger.