April 7, 2022 / Care,Community

The Power of Us Summit Series: Sibling & Teen/Adult Registration Now Open

The Power of Us is stronger than any of us alone.

Over the past two years we have found ourselves stronger as a family unit in many ways. However, we have also come to realize just how deeply every family member is affected by a Duchenne diagnosis.

This year, PPMD has introduced The Power of Us Summit Series, a series of mental wellness retreats bringing together members of our community to discuss topics related to mental health and family relationships, with the goal of developing tools and resources to help us enhance daily life.


Registration is now open for PPMD’s 2022 Power of Us: Sibling Summit which will take place May 21, 2022 in Pittsburgh, PA.

This meeting is for the siblings in our community ages 16 and up, and will focus on topics specific to their experiences. The agenda will feature guided sessions with mental wellness professionals as well as first hand narratives from adult siblings. Topics will include:

  • Wellness tools & resources
  • Family dynamics
  • Managing roles and expectations
  • Identifying anxiety and confronting guilt

Following the meeting, we will have a chaperoned social outing in Pittsburgh where our siblings can bond and have some fun!

The Sibling Summit is an in-person event and will not include a virtual component.


Registration is also open for PPMD’s 2022 Power of Us: Teen & Adult Summit which will take place June 23-26 in Scottsdale, AZ (and virtually!) during PPMD’s 2022 Annual Conference: Teen & Adult Track.

Topics for the Teen & Adult Summit will include:

  • Setting goals and reaching milestones
  • Maintaining social networks post pandemic
  • Taking charge of your life—how to ask for help and educate others

This Summit is for participants with Duchenne or Becker muscular dystrophy, ages 14 and up. Attendees will also have access to all Annual Conference sessions.

The Teen & Adult Summit is available both in-person and virtually as part of PPMD’s 2022 Annual Conference: Teen & Adult Track.

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