August 22, 2022

Santhera & ReveraGen Announce First Participant Dosed in Phase 2 Pilot Study with Vamorolone in Becker

Today Santhera and ReveraGen announced they have dosed the first participant in their Phase 2 study with Vamorolone for individuals with Becker muscular dystrophy. The small pilot study was funded through an FDA grant and…

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August 22, 2022

WATCH: Dyne Therapeutics Update on DYNE-251 (Webinar Recording)

Dyne Therapeutics joined PPMD for a community webinar on Wednesday, July 20, 2022. Dyne provided an update on the recent U.S. Food and Drug Administration (FDA) announcement lifting the DYNE-251 clinical hold and clearing the…

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August 16, 2022

Eliminating the Diagnostic Odyssey: PPMD Studies Published Featuring Family & Care Provider Perspectives

PPMD has long supported efforts to reduce the age of diagnosis, eliminate the diagnostic odyssey, and make diagnosis equitable in Duchenne. Most recently, we reached an incredible milestone with the submission of a nomination package…

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August 16, 2022

2022 #PPMDConference Presentations

2022 PPMD Annual Conference Presentations JUNE 23-26, 2022 | Scottsdale, AZ Thank you to everyone who joined us for PPMD’s 2022 Annual Conference, whether you attended in person in Scottsdale, AZ, or virtually from anywhere…

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August 15, 2022

Celebrate 15 Years of Coach To Cure MD on September 24!

Celebrate 15 Years of Coach To Cure MD! Mark your calendars, get in the game, and help us kick off the 15th year of Coach To Cure MD on Saturday, September 24, 2022! In 2008,…

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August 5, 2022

WATCH: Connect with the Experts – Pain Management (August 2022)

Many people with Duchenne experience pain every day that is often left untreated, or undertreated. Understanding the types of pain, what medications can be safely given, alternative measures of pain relief, and how to discuss…

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August 4, 2022

PPMD Announces Pediatric Certified Duchenne Care Center at Billings Clinic

Today Parent Project Muscular Dystrophy announced the expansion of our renowned Certified Duchenne Care Center (CDCC) Program with the pediatric certification of the Billings Clinic in Billings, Montana. This is an exciting addition to the…

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August 2, 2022

In an Emergency, Remember to T.H.I.N.K. — New PPMD Emergency Care Bundle Now Available!

New PPMD Emergency Care Resources Available As a parent, when your child has a medical emergency and your adrenaline kicks in, it can be difficult to remember all of the things you need to do…

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August 1, 2022

Parent Project Muscular Dystrophy Announces Charity Partnership in Atlanta

Parent Project Muscular Dystrophy Announces Charity Partnership in Atlanta Parent Project Muscular Dystrophy (PPMD), a nonprofit organization leading the fight to end Duchenne muscular dystrophy (Duchenne), has been chosen by Bodies Running Company as the…

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July 29, 2022

Race Athlete Spotlight: Cheryl Kaulback

Cheryl Kaulback is a part of the Race to End Duchenne TD Five Boro Bike Tour in support of Connor, her sons first childhood friend.  We’re thankful for Cheryl for answering the call to action….

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