June 5, 2018

Race Athlete Spotlight: Catie Sims

Catie Sims met Garrett Sapp and his family several years ago when she decided to turn her love of running into a way to help others. Since then she has become part of the Sapp…

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May 31, 2018

WATCH: Introducing PPMO – Webinar Recording with Sarepta Therapeutics

Sarepta Therapeutics, Inc. recently joined Parent Project Muscular Dystrophy (PPMD) for a community webinar update to discuss PPMO, Sarepta’s next generation precision RNA-targeting therapeutic platform for use in Duchenne muscular dystrophy. During the webinar, Sarepta…

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May 25, 2018

Race Recap: 2018 Walt Disney World Marathon Weekend

We’ve just returned from the Walt Disney World Marathon Weekend, which is where the Run For Our Sons program started, and wow what a weekend it was! From Sean Crosby’s inspirational talk at our Team…

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May 24, 2018

WATCH: Anti-Myostatin Adnectin RG6206 in Duchenne – Webinar Recording with Roche/Genentech

Roche/Genentech recently joined Parent Project Muscular Dystrophy for a webinar to provide an update on their Anti-Myostatin Adnectin (RG6206) development program. The team at Roche and its US affiliate, Genentech, and provided an overview of…

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May 18, 2018

Santhera Pharmaceuticals Launches Formal Expanded Access Program in the U.S.

PPMD is pleased to learn that Santhera Pharmaceuticals has launched a formal expanded access program in the U.S. for their investigational therapies, including idebenone. Learn more by visiting the Santhera website.

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May 14, 2018

The Duchenne Carrier Characterization Study at Nationwide Children’s Hospital

May is a month to celebrate mothers. PPMD’s dedication to mothers in our community is, in small part, reflected in our dedication to doing all we can to care for female carriers of Duchenne. The…

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May 12, 2018

End Duchenne Tour Recap: St. Paul, MN

On Saturday, April 28, PPMD had the pleasure of hosting the End Duchenne Tour in St. Paul, MN at Gillette Children’s Specialty Healthcare. This was our first tour visit to St. Paul and we are…

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May 10, 2018

PPMD’s 2018 Annual Conference Agenda is Now Available!

PPMD is excited to unveil the agenda for our 2018 Annual Conference in Scottsdale, AZ, June 28 – June 30, 2018! Each year, PPMD works hard to put together a comprehensive agenda featuring updates in…

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May 9, 2018

May 16 Webinar: Roche/Genentech Anti-Myostatin Adnectin RG6206 in Duchenne

Roche/Genentech will join Parent Project Muscular Dystrophy for a webinar on Wednesday, May 16 at 1:00 PM EDT to provide an update on their Anti-Myostatin Adnectin (RG6206) development program. You will learn more about the team at…

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May 2, 2018

May 9 Webinar: Introducing PPMO – The Future of Precision RNA-Targeted Therapies for Duchenne

Sarepta Therapeutics, Inc. will join Parent Project Muscular Dystrophy for a webinar update on Wednesday, May 9 at 1:00 PM EDT to discuss PPMO, Sarepta’s next generation precision RNA-targeting therapeutic platform for use in Duchenne…

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