Find a Local PPMD Connect Group

PPMD’s Connect is the official family outreach program of Parent Project Muscular Dystrophy. Led by volunteer parents and grandparents, PPMD’s Connect groups serve as regional points of contact for families and individuals affected by Duchenne and Becker.

PPMD’s Connect Goals

  • Family Mentoring: To connect families with local resources, help them better navigate the diagnosis of Duchenne or Becker, and provide ways to connect with other families both in-person and online.
  • Outreach Opportunities: To participate in national awareness and advocacy campaigns.
  • Fundraising Opportunities: From do-it-yourself events to endurance races, there’s a way for everyone to make a difference and support PPMD’s mission.

PPMD’s Connect program launched in 2008. Since then, we’ve expanded to more than 25 states. A Volunteer Coordinator(s) is chosen to head up each of PPMD’s Connect locations, and groups hold in-person get-togethers and serve as a local point of contact for families. Each group also has Facebook group to allow families to seek support and connection online.

New! PPMD’s Sibs Connect

PPMD’s Connect program now includes Siblings! PPMD’s Sibs Connect actively engages individuals that have siblings with Duchenne and Becker muscular dystrophy, and fosters connecting with other siblings, sharing concerns and ideas, and supports siblings at every step of their journey. The group is run by siblings, for siblings and for now is geared toward those ages 16 and older. We hope to be able to expand to younger siblings in the future! If you’re interested in joining PPMD’s Sibs Connect, please fill out our interest survey and we’ll be in touch.

Sibs Interest Survey >

Find a Group Near You

To be connected to a coordinator directly via email please contact connect@parentprojectmd.org or 800-714-5437.

Alabama

Arizona

California

Northern California
Central California
Southern California

Colorado & Wyoming

DMV – DC, Maryland, Northern VA

Florida

Northern/Central Florida
Southern Florida

Georgia & South Carolina

Illinois

Iowa

Kansas & Missouri

Kentucky

Michigan

Minnesota  

Nebraska

New England

New Jersey

New York

Long Island
Western & Central New York

North Carolina

Ohio

Pacific Northwest (Washington & Oregon)

Pennsylvania

Western PA

Tennessee

Texas

North Texas
South Texas

Virginia

Wisconsin

Get Connected

Contact connect@parentprojectmd.org or call 800-714-5437.