Find a Local PPMD Connect Group
PPMD’s Connect is the official family outreach program of Parent Project Muscular Dystrophy. Led by volunteer parents and grandparents, PPMD’s Connect groups serve as regional points of contact for families and individuals affected by Duchenne and Becker.
PPMD’s Connect Goals
- Family Mentoring: To connect families with local resources, help them better navigate the diagnosis of Duchenne or Becker, and provide ways to connect with other families both in-person and online.
- Outreach Opportunities: To participate in national awareness and advocacy campaigns.
- Fundraising Opportunities: From do-it-yourself events to endurance races, there’s a way for everyone to make a difference and support PPMD’s mission.
PPMD’s Connect program launched in 2008. Since then, we’ve expanded to more than 25 states. A Volunteer Coordinator(s) is chosen to head up each of PPMD’s Connect locations, and groups hold in-person get-togethers and serve as a local point of contact for families. Each group also has Facebook group to allow families to seek support and connection online.
New! PPMD’s Sibs Connect
PPMD’s Connect program now includes Siblings! PPMD’s Sibs Connect actively engages individuals that have siblings with Duchenne and Becker muscular dystrophy, and fosters connecting with other siblings, sharing concerns and ideas, and supports siblings at every step of their journey. The group is run by siblings, for siblings and for now is geared toward those ages 16 and older. We hope to be able to expand to younger siblings in the future! If you’re interested in joining PPMD’s Sibs Connect, please fill out our interest survey and we’ll be in touch.
Sibs Interest Survey >Find a Group Near You
To be connected to a coordinator directly via email please contact connect@parentprojectmd.org or 800-714-5437.
Arizona
- Coordinator: Jill Castle
- Join the Facebook Group
California
Northern California
- Coordinators: Leeandra Archdeacon & Julie Garcia
- Join the Facebook Group
Central California
- Coordinator: Kim Calandri
- Join the Facebook group
Southern California
- Coordinator: Rhiannon Hubbard & Desiree Rubio
- Join the Facebook Group
Colorado/Wyoming
- Coordinators: Angela Knight & Debbie Bowman
- Join the Facebook Group
DMV – DC, Maryland, Northern VA
- Coordinators: Jessica Keim
- Join the Facebook Group
Florida
Northern/Central Florida
- Coordinator: Colleen Labbadia
- Join the Facebook Group
Southern Florida
- Coordinators: Mandy Lowe & Lianette Gonzalez
- Join the Facebook Group
Georgia & South Carolina
- Coordinator: Alpa Khushalani
- Join the Facebook Group
Illinois
- Coordinators: Sandy Mabus, Jessica Divin, Lisa Huntley & Kate VanderWeele
- Join the Facebook Group
Iowa
- Coordinators: Jennifer Schwartz & Amy Kohlwes
- Join the Facebook Group
Kentucky
- Coordinators: Melissa & Jeremy Buckman
- Join the Facebook Group
Michigan
- Coordinators: DeAnne Friar, Janell Lundy, & Shellie Phillips
- Join the Facebook Group
Minnesota
- Coordinators: Jack Kirley & Marilyn Ash
- Join the Facebook Group
Nebraska
- Coordinators: Betty Vertin & Susan Samuelson
- Join the Facebook Group
New England
- Coordinator: Amanda Becker & Linda Currier
- Join the Facebook Group
New Jersey
- Coordinators: Suzanne Gaglianone & Limca Jhaveri
- Join the Facebook Group
New York
Long Island
- Coordinators: Kevin & Dianne Carroll and Dustin & Betsy Demmers
- Join the Facebook Group
Western New York
- Coordinators: Christine Piacentino & Susan Parzymieso
- Join the Facebook Group
North Carolina
- Coordinators: Allison Greiner & Lisa Littleton
- Join the Facebook Group
Ohio
- Coordinator: Holly Hudson
- Join the Facebook Group
Pennsylvania
Western PA
- Coordinator: Terri Ellsworth
- Join the Facebook Group
Tennessee
- Coordinators: Chris Cate, Tammy Cate, & Amber Sapp
- Join the Facebook Group
Texas
North Texas
- Coordinators: Stefanie Killian & Debbie Dupree
- Join the Facebook Group
South Texas
- Coordinators: Rachel Poysky & Erin Bullers
- Join the Facebook Group
Virginia
- Coordinator: Colin Werth, Beth Bumgarner & Amy Ridolphi
- Join the Facebook Group
Washington
- Coordinator: Lynn Bartels
- Join the Facebook Group
Wisconsin
- Coordinator: Gretchen Egner
- Join the Facebook Group
Get Connected
Contact connect@parentprojectmd.org or call 800-714-5437.