April 13, 2021

Take Action Before House Letter Closes! Deadline is Friday, April 16

Our numbers in the House of Representatives for this year’s Funding Request to Congress continue to rise!  We have 65 House members signed on so far with the deadline for signatures this Friday, April 16….

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April 12, 2021

Support PPMD to turn obstacles into possibilities

When I think about Duchenne research, I am awestruck. It is hard to wrap my head around how far we’ve come since my boys were diagnosed, but I also know we still have quite a…

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April 8, 2021

PPMD Awards $31,500 Grant to Understand Immune Response to CRISPR/Cas-9 Gene Editing Strategies

PPMD is excited to award the University of Missouri School of Medicine a bridge grant for $31,500 to continue evaluating CRISPR therapy in a pre-clinical model of Duchenne. The project is led by Dongsheng Duan,…

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April 7, 2021

Crafting to End Duchenne

Crafting to End Duchenne Restrictions on large gatherings made the Labbadia family’s annual kickball tournament fundraiser impossible in 2020, so instead they chose an activity they could do together as a family while bringing holiday…

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April 7, 2021

WATCH: Transforming the Treatment Paradigm with Dyne Therapeutics (Webinar Recording)

Dyne Therapeutics joined Parent Project Muscular Dystrophy (PPMD) for a webinar on March 31, 2021 to provide an overview of the company’s mission, its novel FORCE platform designed to revolutionize drug delivery to muscle, and…

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April 6, 2021

PPMD Awards $450,000 to Collaborative Duchenne Muscular Dystrophy Care Projects

Parent Project Muscular Dystrophy (PPMD) is pleased to announce awards to three collaborative Certified Duchenne Care Center (CDCC) network projects totaling $450,000. Under PPMD’s 2021 CDCC Inter-Institutional Collaboration Grant Program, these grants will support the…

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April 1, 2021

Register Today for PPMD’s 2021 Annual Conference — Virtual Edition!

PPMD’s Annual Conference – Virtual Edition Registration is now open for PPMD’s 2021 Virtual Annual Conference! 2021 remains an extraordinary time for our global community. We are getting closer to safer days ahead and we want…

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March 29, 2021

Duchenne Funding Letter Update: Progress in the House of Representatives

We’ve had a tremendous start in the House of Representatives for this year’s Duchenne Funding Request to Congress, with 31 House members signed on so far! Help us increase this number by contacting your member…

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March 26, 2021

WATCH: Santhera Pharmaceuticals Duchenne Drug Development Update (Webinar Recording)

Santhera Pharmaceuticals joined Parent Project Muscular Dystrophy (PPMD) for a webinar on March 24, 2021 to provide an update to the community about the investigational therapy vamorolone, the use of steroids to treat Duchenne muscular…

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March 19, 2021

WATCH: Solid Biosciences Presents Safety & Efficacy Update (Webinar Recording)

On March 16, 2021, Solid Biosciences joined PPMD for a webinar to provide a safety and efficacy update on the ongoing IGNITE DMD phase I/II clinical study of SGT-001 microdystrophin gene therapy in patients with…

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