Connecting with NE Families
Connect with Nebraska Duchenne Families on Facebook through our Connect Program. You will need to request to be add to the group first.
Accessibility and Recreation
Seeking your suggestions!
Education
Advocacy Agencies
- Disability Rights Nebraska
Eric Evans, Chief Executive Officer
134 13th Street, Suite 600
Lincoln, NE 68508
402-474-3183
800-422-6691
Website
E-Mail: info@disabilityrightsnebraska.org
Department of Education
- Special Populations Office
Nebraska Department of Education
Gary M. Sherman, Administrator
301 Centennial Mall South
P. O. Box 94987
Lincoln Nebraska 68509
402-471-2296
Website
Contact information
Early Intervention Services (Infant and toddler)
- Nebraska Early Development Network
Nebraska Department of Health & Human Services
P.O. Box 94987
Lincoln, NE 68509-4987
402-471-2471
888-806-6287
Website
Contact information
Early Intervention Services (Ages 3 to 5)
- Special Populations Office, Department of Education
Jan Thelen, 619 Coordinator
301 Centennial Mall South
P.O. Box 94987
Lincoln, NE 68509
(402) 471-4319
402-471-0117 FAX
Website
Contact information
PTI (Parent Training and Information Centers)
- PTI Nebraska
3135 North 93rd Street
Omaha, NE 68134
402-346-0525 Voice & TDD
402-934-1479 FAX
800-284-8520
Website
Contact information
Health & Well-Being
- Katie Beckett Home and Community Services Program
This Home and Community Based Services program provides services to children under age 18 who meet Nursing Facility Level of Care criteria, depend of a ventilator or tracheotomy or have expensive and complex medical needs. Financial eligibility is based on the child’s income with family income “waived” or not considered. Services include nursing care, hospitalizations, medicines, medical supplies and equipment and physician fees.
Website - Disabled Children’s Children’s Program (DCP)
The DCP provides non-medical services to children with disabilities under age 16 who receive Social Security Supplemental Income. Services include respite care, mileage, meals and lodging when traveling with the child for medical appointments and equipment and home modifications needed for accessibility.
DCP information - Medically Handicapped Children’s Program (MHCP)
The MHCP provides specialized medical services to financially eligible children with disabilities or ongoing health care needs. Services include diagnostic and treatment services, financial assistance with high cost of medical care and assistance with accessing additional community resources.
MHCP information
- Aged and Disabled Waiver (AD)
This Home and Community Based Services program provides services to financially eligible individuals with disabilities that meet Nursing Facility Level of Care criteria allowing them to remain at home and in the community. Services include services coordination (case management), respite care, special equipment and home modifications for accessibility and in-home assistance.
AD Waiver information - Health Insurance Premium Payment Program (HIPP)
The Health Insurance Premium Payment Program reimburses private health insurance premiums for individuals eligible for Medicaid when financially appropriate.
Program information - Hunter’s Hope
Hunter’s Hope exists to reduce the stressors for local families affected by Duchenne Muscular Dystrophy and DEGS 1 Leukodystrophy by eliminating barriers to accessible resources, funding research to find effective treatments and improving community understanding of these rare diseases.
Hunter’s Hope Heroes
