Earlier this week, Duchenne parent and PPMD Advocate Jill Castle testified before the Arizona State Senate Health & Human Services Committee in support of Senate Bill 1020, which seeks to add Duchenne to Arizona’s newborn screening panel. PPMD, along with partner organizations, also signed onto a letter in support of SB 1020.
We’re excited to share that SB 1020 passed the Arizona Senate 7-0! PPMD will share updates on the next steps for these efforts in Arizona as they continue to move forward.
Thank you, Jill, for sharing your family’s story and advocating for the Duchenne community! Your unwavering effort is paving the way for Duchenne newborn screening in Arizona and states across the country.
Our vision is to ensure that all babies in all states have the same opportunities for diagnosis and care. PPMD continues to work towards the inclusion of Duchenne on the federal Recommended Uniform Screening panel (RUSP), promoting newborn screening for Duchenne in other states, and expanding additional Certified Duchenne Care Centers across the country.
If you are interested in supporting state or federal efforts by sharing your story or contacting your state elected officials, please reach out to Lauren Stanford at firstname.lastname@example.org.