April 14, 2026 /

Webinar: Understanding the Expanded Duchenne Natural History Study (eDNHS)

This webinar shares information about the expanded Duchenne Natural History Study (eDNHS)—a global observational study designed to deepen our understanding of Duchenne muscular dystrophy in today’s therapeutic environment.

Building on the original Duchenne Natural History Study conducted from 2005–2016, the eDNHS is sponsored by the University of California, Davis and conducted in partnership with the Cooperative International Neuromuscular Research Group (CINRG), PPMD, and multiple industry partners. The study is currently enrolling participants across international clinical sites and aims to capture critical long-term data on disease progression, treatment patterns, and outcomes for individuals living with Duchenne.

This webinar aims to give the community the opportunity to learn about the purpose of the study, how it is designed, how you can participate and why this study is so important for the future of Duchenne therapy development and care.


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