Many people with Duchenne experience pain every day that is often left untreated, or undertreated. Understanding the types of pain, what medications can be safely given, alternative measures of pain relief, and how to discuss it with your neuromuscular team are just a few key points in managing pain in Duchenne.

During our community webinar on August 2, 2022 on pain management, PPMD was joined by a panel of experts to discuss these topics and various treatment options.

Moderator:

• Rachel Schrader, MS, APRN, CPNP-PC
  Vice President, Clinical Care and Education
  Parent Project Muscular Dystrophy

Panelists:

• Sue Apkon, MD
  Chief, Department Rehabilitation
  Children’s Hospital Colorado
• Claudia Senesac, PT, PhD
  Pediatric Physical Therapist and ImagingNMD Project Manager
  University of Florida
• Rachel Thienprayoon, MD
  Medical Director, StarShine Hospice and Palliative Care
  Cincinnati Children’s Hospital Medical Center

LEARN MORE

Click here to view more resources related to pain management in Duchenne.