Many people with Duchenne experience pain every day that is often left untreated, or undertreated. Understanding the types of pain, what medications can be safely given, alternative measures of pain relief, and how to discuss it with your neuromuscular team are just a few key points in managing pain in Duchenne.
During our community webinar on August 2, 2022 on pain management, PPMD was joined by a panel of experts to discuss these topics and various treatment options.
- Rachel Schrader, MS, APRN, CPNP-PC
Vice President, Clinical Care and Education
Parent Project Muscular Dystrophy
- Sue Apkon, MD
Chief, Department Rehabilitation
Children’s Hospital Colorado
- Claudia Senesac, PT, PhD
Pediatric Physical Therapist and ImagingNMD Project Manager
University of Florida
- Rachel Thienprayoon, MD
Medical Director, StarShine Hospice and Palliative Care
Cincinnati Children’s Hospital Medical Center
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