PPMD’S 2019 ANNUAL CONFERENCE
JUNE 26 – JUNE 30, 2019
Your last opportunity to join us at the 2019 PPMD Annual Conference at our Early Bird Registration Rate ends Wednesday, April 24! This year’s Annual Conference promises to be one of our most informative and impactful meetings in our 25-year history. The only thing missing is YOU!
No other Duchenne conference comes close to the experience of the PPMD Annual Conference. Families, physicians, researchers, caregivers, industry partners, and those living with Duchenne gather to discuss all topics Duchenne. They gather to connect, to share information, and to discuss and debate the latest opportunities in Duchenne research.
This conference is like no other. Here the key is community. All pieces of this incredible community come together to learn, to listen, and to look forward at driving change. Every single voice is important, and every moment is rich. Now is the time for us to come together as a community, and seize this moment.
The field is ripe with opportunity and at the PPMD Annual Conference partnerships are built, questions are asked and answered, and friendships are forged.
Register by April 24 to take advantage of our Early Bird registration rate!
This year in Orlando, FL you will hear current and critical information on:
- Managing care at every age of Duchenne — what aspects of care you need to know now and in the future
- Understanding Duchenne mutations and disease course
- Duchenne clinical trials, both ongoing and upcoming, the advancements and the timelines
- Gene Therapy and where this research is heading
- Accessing therapies and the future of treatments
- Impacting research, trials, and treatment through advocacy and collaboration
- Encouraging independence and social integration
- Parent to parent real life information — managing your family
- Managing Behavior issues in Duchenne
- Living with Duchenne — those living with Duchenne spend time with and learn from our PPMD Adult Advisory Committee about everyday life
Newly Diagnosed Program
PPMD will again be offering a support program for newly diagnosed Duchenne families to attend the Annual Conference. If your child has been diagnosed with Duchenne after January 2017 and you have never attended a PPMD Annual Conference, this is your opportunity. Gain a better understanding of Duchenne care and research, and meet other families living with this diagnosis. Please apply for this scholarship to waive your conference registration fees.*
*PPMD can offer conference scholarships to approximately 30 families on a first come, first serve basis. This scholarship covers conference fees only and does not cover travel or hotel accommodations. Kids Track and the Teens/Adults Track are not included in this sponsorship.
Teens & Adults Track
This programming is for participants with Duchenne or Becker muscular dystrophy, ages 14 and up only.
PPMD formally introduced specific programing for Teens and Adults living with Duchenne at the 2016 Annual Conference. Since then, the desire for more of this programing to include social events as well as closed-door care and life management sessions has helped to drive a robust Teens & Adults Track at the meeting.
Kids Track & Sib Shop
This programming is for all children ages 5-14.
One of our most exciting and fast-growing programs at the Annual Conference is our Kids Track! During these sessions there will be entertainment, special group games, crafts and activities (broken into 3 age groups; minimum age is 5), and loads of interactive fun.
As a program of the Kids Track, PPMD will offer a Sib Shop for those children who are siblings to people with Duchenne. This breakout for the siblings has become a successful element of PPMD’s educational events and is a safe place for siblings to be together, talk, and really open up on topics that they face.
PPMD’s Annual Conference prides itself on bringing together the most important thought leaders in the Duchenne space. But just as importantly, we hope you will find this conference as a chance to really connect with this passionate and supportive community — a community few of us chose to be a part of, but none of us can live without.
We can’t wait to see you and your family in Orlando, Florida!