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Nebraska

In April 2026, Nebraska’s Newborn Screening Advisory Committee voted to recommend adding Duchenne to the state’s newborn screening panel. This recommendation must now be submitted to Governor Pillen for final approval through the state’s regulatory or legislative process before implementation can begin. PPMD will support Nebraska’s newborn screening advocates throughout these next steps.

 

Please submit our interest survey to learn how you can get involved in supporting these efforts in your state.

In April 2026, Nebraska's Newborn Screening Advisory Committee voted to recommend adding Duchenne to the state's newborn screening panel. This ...

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  • Legislation/Committee Pending
  • RUSP aligned

Newborn Screening Advocacy Toolkit

Download resources to support Duchenne newborn screening efforts

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