About PPMD
Events
News
About Duchenne
What is Duchenne?
Duchenne 101
Genetic Causes
Progression
Types of Genetic Variants
Carriers
Is it Duchenne?
Signs & Symptoms
Diagnosis
Genetic Testing
Genetic Counseling
Newborn Screening
Newly Diagnosed?
What You Need to Know
Join the Community
Things to Do Now
Decode Duchenne Free Genetic Testing Program
Care
For Families
For Newly Diagnosed
Assembling a Care Team
Transition of Care Through Adulthood
Community Resource Center
Knight Hacks: Everyday Tips & Tricks for Families
School Resources
Living Duchenne Podcast
Mobile App
Find a Certified Duchenne Care Center
Duchenne Care Guidelines
By Areas of Care
By Stage of Progression
Emergency Care
Surgery & Anesthesia Precautions
COVID-19 Information Center
Access & Coverage Resources
For New Therapies
For Medical Equipment
Support & Care Materials
Webinar & Video Library
PPMD For You: Schedule a One-To-One Meeting for Personalized Support
For Adults / Young Adults
For Carriers
For Healthcare Professionals
For Educators
Our Strategy & Impact
Advocacy
Our Strategy & Impact
Legislation & Public Policy
Regulatory
Access & Coverage
Become an Advocate
Ongoing Initiatives
Insurance Access & Coverage Resources
Duchenne Newborn Screening Action Center
Take Action
Current Action Alerts
Advocacy Conference
Advocacy Results
Advocacy News
Research
Current Research
Our Strategy & Impact
Therapeutic Approaches
Drug Development Pipeline
Understanding Clinical Trials
Explore Clinical Trials
Gene Therapy Hub
The Duchenne Registry
PPMD Venture Pathways
For Researchers & Industry
Recruit for Research
Research Grant Opportunities
Drug Development Roundtable
Resources
Get Involved
Donate
Make a Donation
Matching Gifts
Find Sponsorship Opportunities
PPMD Merchandise
Fundraise
Race to End Duchenne
DIY Fundraising
Coach To Cure MD
Duchenne Action Month & World Duchenne Awareness Day
Advocate
Join The Duchenne Registry
Ways to Connect
Find a Local Connect Group
The PAAC: Teens & Adults with Duchenne
Tweens (ages 9-14)
Siblings
PPMD Lighthouse Workshops
Attend Events
Annual Conference
PPMD Together
Advocacy Conference
See all events
Join our email List
Duchenne Registry
Donate
Duchenne Registry
Donate
About Duchenne
What is Duchenne?
Duchenne 101
Genetic Causes
Progression
Types of Genetic Variants
Carriers
Is it Duchenne?
Signs & Symptoms
Diagnosis
Genetic Testing
Genetic Counseling
Newly Diagnosed?
What You Need to Know
Join the Community
Things to Do Now
Decode Duchenne Program
Care
PPMD COVID-19 Information Center
Care Guidelines
By Area
By Stage
Emergency Care
Surgery & Anesthesia Precautions
For Families
For Newly Diagnosed
Assembling a Care Team
Transition of Care Through Adulthood
School Resources
Webinar & Video Library
Find a Certified Care Center
Care & Support Materials
Community Resource Center
Daily Living Resources
State-Specific Resources
Insurance Access & Coverage Resources
For Adults / Young Adults
For Carriers
For Healthcare Providers
For Educators
Our Strategy & Impact
Living Duchenne Podcast
Advocacy
Our Strategy & Impact
Legislation & Public Policy Advocacy
Regulatory Advocacy
Access & Coverage Advocacy
Become an Advocate
Ongoing Initiatives
Insurance Access & Coverage Resources
Take Action
Current Action Alerts
Find Your Legislators
Advocacy Conference
Advocacy Results
Advocacy News
Insurance Access & Coverage Resources
Research
Current Research
Our Strategy & Impact
Therapeutic Approaches
Drug Development Pipeline
The Duchenne Registry
Clinical Trials
Understanding Clinical Trials
Considering a Clinical Trial
Explore Clinical Trials
For Researchers & Industry
Recruit for Research
Research Grant Opportunities
PPMD’s Drug Development Roundtable
Resources
Get Involved
Donate
Fundraise
Race to End Duchenne
DIY Fundraising
Coach To Cure MD
Attend Events
Annual Conference
PPMD Together
Advocacy Conference
See all events
Advocate
Ways to Connect
Find a Local PPMD Connect Group
Download PPMD’s Mobile App
PPMD Lighthouse Workshops
PPMD Merchandise
Find Sponsorship Opportunities
Duchenne Action Month
Join our email List
About PPMD
Events
News
Events
Categories
.1K Series
Advocacy
Awareness Event
Conferences & Meetings
DIY Fundraiser
DIY Race
Endurance Race
Special Occasion
Virtual Social
Webinar
Home
❯
Advocacy
❯
Duchenne Newborn Screening Action Center
❯
Tribute & Memorial
Research
Advocacy
Care
Community
Join Our Mailing List
Email