Addressing the Complexities of Duchenne (PPMD 2019 Conference) Addressing the Complexities of Duchenne – What You Should Know Moderator: Anessa Fehsenfeld 0:10 – Attacking Duchenne from Every Angle – Anessa Fehsenfeld, PPMD Chairman 3:40 – Duchenne Research and Clinical Trials – Abby Bronson Current therapeutic approaches and clinical trials Strategies to accelerate the process 4:00 – Working to Facilitate a Favorable Access Environment – Annie Kennedy Influencing policy and infrastructure that drives Duchenne research, treatments, and access Producing evidence to reflect the Duchenne community’s experience to inform decision-making by all stakeholders within the access ecosystem 4:15 – Improvements in Care: Extending Quality of Life with a Focus on the Future – Kathi Kinnett The Certified Duchenne Care Center network accomplishments Integrating clinics, industry, and The Duchenne Registry to build a solid network 4:30 – The Patient Voice: Your Data Informing the Drug Development Ecosystem – Ryan Fischer Your preferences and participation drives innovation and change The Duchenne Registry and The Duchenne Outcomes Research Interchange 4:55p – POLLING QUESTIONS 2019 PPMD Annual Conference,Conferences & Meetings 6 years ago You may also like 17:08 Tech Life Hacks for Adults with Duchenne 5 years ago Conferences & Meetings,For Teens & Adults,Teen & Adult Track 31:01 Pre-Clinical Animal Models 5 years ago Conferences & Meetings,Foundations of Drug Development 16:45 Optimizing Clinical Trials 5 years ago Conferences & Meetings,Foundations of Drug Development 23:07 Participation in Clinical Trials 5 years ago Conferences & Meetings,Foundations of Drug Development 20:26 FibroGen 5 years ago Conferences & Meetings,In the Pipeline: Combating Fibrosis & Inflammation 22:59 Italfarmaco 5 years ago Conferences & Meetings,In the Pipeline: Combating Fibrosis & Inflammation 21:06 Capricor Therapeutics 5 years ago Conferences & Meetings,In the Pipeline: Combating Fibrosis & Inflammation 18:40 Sarepta Therapeutics 5 years ago Conferences & Meetings,In the Pipeline: Gene Therapy gene therapy «1…2021222324…28»Page 22 of 28