Addressing the Complexities of Duchenne (PPMD 2019 Conference) Addressing the Complexities of Duchenne – What You Should Know Moderator: Anessa Fehsenfeld 0:10 – Attacking Duchenne from Every Angle – Anessa Fehsenfeld, PPMD Chairman 3:40 – Duchenne Research and Clinical Trials – Abby Bronson Current therapeutic approaches and clinical trials Strategies to accelerate the process 4:00 – Working to Facilitate a Favorable Access Environment – Annie Kennedy Influencing policy and infrastructure that drives Duchenne research, treatments, and access Producing evidence to reflect the Duchenne community’s experience to inform decision-making by all stakeholders within the access ecosystem 4:15 – Improvements in Care: Extending Quality of Life with a Focus on the Future – Kathi Kinnett The Certified Duchenne Care Center network accomplishments Integrating clinics, industry, and The Duchenne Registry to build a solid network 4:30 – The Patient Voice: Your Data Informing the Drug Development Ecosystem – Ryan Fischer Your preferences and participation drives innovation and change The Duchenne Registry and The Duchenne Outcomes Research Interchange 4:55p – POLLING QUESTIONS 2019 PPMD Annual Conference,Conferences & Meetings 6 years ago You may also like Stronger Together: Empowering Families Through Community, Care, and Research – 2025 PPMD Annual Conference 2 days ago 2025 PPMD Annual Conference,Conferences & Meetings A New Era of Steroids, Endocrinology & Emergency Care – 2025 PPMD Annual Conference 2 days ago 2025 PPMD Annual Conference,Conferences & Meetings Opening Session: A New Era in Duchenne & Becker Muscular Dystrophy – 2025 PPMD Annual Conference 2 days ago 2025 PPMD Annual Conference,Conferences & Meetings The Impact of Diagnosis: Managing Family Dynamics – 2025 PPMD Annual Conference 2 days ago 2025 PPMD Annual Conference,Conferences & Meetings Exploring the Landscape of Gene Therapy – 2025 PPMD Annual Conference 2 days ago 2025 PPMD Annual Conference,Conferences & Meetings Trials & Treatments: Making Decisions that are Right for You – 2025 PPMD Annual Conference 2 days ago 2025 PPMD Annual Conference,Conferences & Meetings Building Friendships & Self Advocacy Skills – 2025 PPMD Annual Conference 2 days ago 2025 PPMD Annual Conference,Conferences & Meetings Keynote Address: Meeting the Challenge of Rare Disease – 2025 PPMD Annual Conference 2 days ago 2025 PPMD Annual Conference,Conferences & Meetings 123…28»Page 1 of 28