In May 2025, Governor Ron DeSantis signed HB 1098/SB 524 into law, which requires the state to launch Duchenne newborn screening once implementation funding is secured. Our advocacy efforts are currently focused on securing the necessary funding to move the program forward.
Take action to add Duchenne to Florida’s newborn screening panel HERE!
In May 2025, Governor Ron DeSantis signed HB 1098/SB 524 into law, which requires the state to launch Duchenne newborn ...
Read MoreIf you are interested in supporting state or federal efforts for Duchenne newborn screening, sign up to become a PPMD Advocate.
Download resources to support Duchenne newborn screening efforts
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