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Care Consideration Guidelines
Over the past several decades, perhaps the greatest advance in the fight to end Duchenne is in the way we care for people with Duchenne and Becker. Although there is not yet a cure for Duchenne or Becker, there are accepted treatments and therapies that can reduce symptoms and improve quality of life.
Parent Project Muscular Dystrophy takes its role as the leader in the Duchenne community very seriously, and insisted that standards of care be put in place. The result is that people with Duchenne are living longer, healthier, happier lives.
Some clinics will do more than is recommended, but no clinics should do less than what is recommended. Ensure that your son is getting the best care available. Talk to your healthcare team about the care guidelines.
Download the Care Guidelines for Duchenne: