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Care For Duchenne

Adult Phase

Perhaps the greatest advance that has been made in the fight to end Duchenne over the last several decades has been in the way we care for people diagnosed with Duchenne.

Parent Project Muscular Dystrophy takes its role as a leader in the Duchenne community very seriously, and insisted that standards of care be put in place. The result is that people with Duchenne are living longer, healthier, happier lives.

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Explore by AreaAreas of Care

Duchenne and Becker can cause symptoms throughout the body. Learn about the effects of Duchenne and Becker on different body systems.


Explore by Stage Stages of Duchenne

Although the progression and severity of each case is different, there are generally recognized stages of Duchenne and Becker that you can explore.



In this section
Care Guidelines
Explore by Area
Explore by Stage
Surgery & Anesthesia
Emergency Care
Certified Duchenne Care Centers
Resource Materials
For Professionals
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How We Help

Our family-centered approach is at the heart of everything we do. Learn more.

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Let's seize this moment.


There has never been so much momentum in the Duchenne community. Help us keep moving forward by donating to fund CRISPR/Cas9 gene‑editing technology. Every gift to PPMD is being doubled until we raise $250,000—but we have to reach this goal by 12/31!