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Certified Duchenne Care Centers
People with Duchenne are being cared for by clinics both near and far. Every one of them deserves the best care and treatment possible. Parents, caregivers, patients have the right to know who is in charge of delivering the care they require and to understand what clinics meet optimal standards.
For this reason, a group of experts agreed to give families the information that they deserve and to develop a methodology and process by which to certify clinics delivering comprehensive care, and then measure results.
The Certified Duchenne Care Center Program helps to ensure centers maintain the highest standards in clinical and sub-specialty services, rapidly apply new evidence based knowledge, and comply with standards in clinical care that were established by the CDC Care Considerations. The goal of the program is to reduce discrepancies in care and to make comprehensive care accessible and available for all patients with Duchenne.
We have currently certified nine centers across the country. Over the coming year, plans are being made to award other qualified centers.
Provide Feedback on Your Care Center
A very important part of care, and certification, is patient and parent input. Updating your information in DuchenneConnect, and completing the Clinical Experiences Survey, will help us to continue to make sure that you/your child is receiving the best care possible.
Please make sure to:
Your responses will help us to continue to sustain and improve the care and services provided to you and your family.
Is your center interested in becoming a Certified Duchenne Care Center?
Review the CDCC Program Requirements for Care and Services (PDF) to determine your eligibility.
To learn more about PPMD’s Certified Duchenne Care Center Program, please contact Kathi Kinnett at Kathi@ParentProjectMD.org.