Once Duchenne enters your life, you learn to be resilient even if it is against your wishes. You learn to come together to get through the tough times, even if it is with a community you wish you never had to find. Time and time again, we are reminded of the Power of Us.
My son Nathan is 13 years old and he is the light of my life. My family is my purpose and my life revolves around them. Shortly after Nathan’s diagnosis of Duchenne he began to progress quickly so we moved to an accessible home and I left my career to care for my son full time. That was my gift to him. To care for him daily and to enrich his life in any way possible is something I treasure.
PPMD is the best family you never asked for. That is what I tell people when asked about my son’s journey with Duchenne.
I have put my full faith and trust in PPMD to fund research that will make progress and to always have the best interests of our community at heart. The Power of Us is stronger together and that is why I ask you to support PPMD’s supplemental funding to the Wellstone Muscular Dystrophy Cooperative Research Centers.
This network of collaborative institutions is leading the way in research for Duchenne and Becker muscular dystrophies. They are the foundation for the best and brightest in the field to become the innovators of tomorrow.
Watching my son lose his mobility has been excruciating, but the power of this community to support one another and to keep moving forward inspires me.
Join the Power of Us today, and your gift will be DOUBLED thanks to our generous community. That means your support will go twice as far in reaching our goal of $400,000 in supplemental funding to the Wellstone centers.
When I look back at the progress made in the fight to end Duchenne since Nathan’s diagnosis, I am hopeful. With each dollar you contribute, you are not just giving hope to my son, but to our entire community.