December 6, 2019

Donate to PPMD today, make tomorrow stronger

Thank you to everyone who donated to PPMD on #GivingTuesday! Your generosity and a matching gift from my dear friends, Mary-Lou & Larry Weisman, enabled PPMD to begin the holiday season strong. We hope you…

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November 27, 2019

Thankful that you believe in PPMD

Today is one of my favorite days of the year. Thanksgiving is a holiday that revolves solely around friends and family coming together to just eat, maybe have a little wine, and then eat some…

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November 18, 2019

Finding Hope, Seeing Progress

Clinical trials are HARD. How many times have you heard that? But it’s true. Expectations, anticipation, screening, burden of participation with frequent clinic visits, blood draws, outcome measures and waiting for news. This year has…

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November 12, 2019

The Duchenne Registry App is Available Now!

After twelve years of collecting data to advance research for Duchenne, PPMD’s Duchenne Registry is excited to share the new and improved Duchenne Registry Mobile App with our community of patients and caregivers! We believe the app will make…

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November 8, 2019

Join the 2020 PPMD Adult Advisory Committee! Application Deadline: Friday, November 15

Been looking for a way to engage with the community a bit more? Have personal experience that you’d like to see be better reflected in national policy and program efforts? Interested in serving as a…

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November 4, 2019

End Duchenne Tour Recap: Memphis, TN

PPMD’s End Duchenne Tour made a stop in Memphis, TN on Saturday, October 26. We were joined by over 60 people,  including families, an amazing group of volunteers in our kids room, six members of…

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October 21, 2019

Whataburger Customer Promotion for Coach To Cure MD Raises $89,807 to Benefit PPMD

We are so excited to announce that Whataburger’s first-event customer promotion to benefit PPMD raised $89,807! Whataburger partnered with Coach To Cure MD to run this promotion in the Dallas/Fort Worth area locations. “We are…

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October 21, 2019

Transitioning to a New Role – While Keeping My Arms Wrapped Around Duchenne

Over the last few weeks, I have spent many hours reflecting on just how privileged I have been to share this journey with so many of you, and have spent hours recounting highlights among these…

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October 11, 2019

Calling All Adults with Duchenne & Becker MD: Join the 2020 PPMD Adult Advisory Committee!

Been looking for a way to engage with the community a bit more? Have personal experience that you’d like to see be better reflected in national policy and program efforts? Interested in serving as a…

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October 9, 2019

2020 Make Every Day Count Award Winner: Gretchen Brentner Egner

Race to End Duchenne and Team Danny are pleased to announce the winner of the 2020 Make Every Day Count Award: Gretchen Brentner Egner! The Make Every Day Count Award was started in 2019 to honor…

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