Connecting with PA Families
Connect with Pennsylvania Duchenne Families on Facebook through our Connect Program. You will need to request to be add to the group first.
Accessibility & Recreation
- Pennsylvania Center for Adaptive Sports
Providing specialized equipment and making adaptations where necessary, the Center serves 500 individuals with disabilities annually.
Website - Powerchair Hockey – Philadelphia PowerPlay
The Philadelphia Flyers PowerPlay, a 501 (c) (3) nonprofit organization, is a power wheelchair floor hockey team based in the Philadelphia Metropolitan Area.
Website
Education
Advocacy Agencies
- Disability Rights Pennsylvania
301 Chestnut Street, Suite 300
Harrisburg, PA 17101
717-236-8110
800-692-7443
717-346-0293 (TTY)
877-375-7139 (TTY)
Website
Contact information
Department of Education
- Bureau of Special Education
Department of Education
333 Market Street, 7th Floor
Harrisburg, PA 17126-0333
800-879-2301
717-783-6913
717-783-8445 (TTY)
Website
Early Intervention Services (Infant and toddler)
- Division of Early Intervention and Support Services
Bureau of Special Education
Department of Education
333 Market Street, 7th Floor
Harrisburg, PA 17126-0333
717-783-6882
800-692-7288
Website
Early Intervention Services (Ages 3 to 5)
- Division of Early Intervention and Support Services
Bureau of Special Education
Department of Education
333 Market Street, 7th Floor
Harrisburg, PA 17126-0333
717-783-6882
800-692-7288
Website
PTI (Parent Training and Information Centers
- HUNE, Inc. (Hispanos Unidos para Niños Excepcionales)
(Hispanics United for Exceptional Children)
2215 N. America St
Philadelphia, PA 19133
215-425-6203
215-425-6204 FAX
E-Mail: huneinc@aol.com
Website
- Parent Education & Advocacy Leadership Center
1119 Penn Avenue, Suite 400
Pittsburgh, PA 15222-4205
412-281-4404
412-281-4409 (TTY)
866-950-1040
Website
Contact information
College Resources
- The John Lepping Memorial Scholarship
Scholarship designed by the Lep Foundation for Youth Education (a public charity that provides financial assistance to Tri-State students seeking to further their education).
Website
Health & Well-Being
- Children’s Health Insurance Program (CHIP)
This program provides health insurance to eligible uninsured children under age 19 who are not the Medical Assistance program. Families with higher incomes pay a monthly premium and co-pays for some services.
CHIP information
CHIP Eligibility Information - Medical Assistance PH-95 Category (loophole)
Eligible children with specific Social Security childhood disability standard conditions may receive health insurance through this program. Parental income and resources are not considered and financial eligibility is based on the child’s qualifying income.
PH-95 information (PDF)
Social Security Childhood Impairment listings - Health Insurance Payment Program
The Health Insurance Premium Payment (HIPP) Program is a program developed to help families, who have at least one person enrolled in Medical Assistance (MA), pay for private health insurance through an employer. It was designed as a cost containment program in order to save taxpayers money by purchasing cost effective employment related health insurance available to a Medical Assistance recipient.
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