Connecting with IL Families

Connect with Illinois Duchenne Families on Facebook through our Connect Program. You will need to request to be added to the group first.

Accessibility & Recreation

  • Glencoe Beach
    This is a beautiful beach with great accessibility and picnic shelters. They use their own golf carts to take you down to the beach area when handicapped parking by the beach is full.


Advocacy Agencies

  • Equip for Equality, Inc.
    Equip for Equality’s mission is to advance the human and civil rights of children and adults with disabilities in Illinois.
    11 East Adams, Suite 1200
    Chicago, IL 60603
    800-610-2779 TTY
  • Illinois Department on Aging
    The Adult Protective Services Program (APS) works to prevent abuse, neglect, exploitation, and self-neglect of adults age 60 or older and people with disabilities age 18-59 living in the community.
    1-888-206-1327 (TTY)

Department of Education

  • Illinois State Board of Education
    Department of Special Education
    100 N. First Street, N-243
    Springfield, IL 62777-0001
    217-782-5589 Springfield
    312-814-8498 Chicago

Early Intervention Services (Infant and toddler)

  • Department of Human Services
    Division of Community Health and Prevention
    Bureau of Early Intervention
    Janet Gully, Chief
    222 South College, 2nd Floor
    Springfield, IL 62704
    217-524-6248 FAX
    Contact information

Early Intervention Services (Ages 3 to 5)

  • Center for Educational Innovation and Reform
    Early Childhood Division
    Division Administrator
    100 North First Street, E-230
    Springfield, IL 62777-0001
    217-785-7849 FAX

PTI (Parent Training and Information Centers)

  • Family Matters (ARC Community Support System)
    1901 S. 4th St., Ste 209
    Effingham, IL 62401
    217-347-5119 FAX
  • Family Resource Center on Disabilities
    20 E. Jackson Blvd., Room 300
    Chicago, IL 60604
    312-939-3519 TTY
    312-939-7297 FAX

Health & Well-Being

  • Illinois All Kids Children’s Health Insurance Program
    Provides health insurance to children under age 19.  Eligibility based on family size and income.  Some families pay monthly premiums based on income.
    All Kids information
  • Persons with Disabilities Home and Community Based Services Waiver Programs
    Program provides services to eligible adults and children with disabilities that meet Nursing Facility Level of Care criteria.  Services provided to help individuals remain in their home or community include personal assistant, home health aide, nursing and homemaker care as well as specialized medical equipment and environmental (home) adaptations for accessibility.
    Persons with Disabilities information
  • Medically Fragile/Technology Dependent Children Waiver
    Children who meet the state’s disability criteria and require Nursing Facility or Hospital Level of care may receive services allowing them to remain at home or within the community.  Services include environmental (home) modifications for accessibility, specialized equipment and supplies and respite services.
    Medically Fragile/Technology Dependent Children information
    University of Illinois Chicago’s Division of Specialized Care for Children (FREE care coordination)
  • Support Waiver for Children and Young Adults with Developmental Disabilities
    Eligible children and young adults ages 3-21with developmental disabilities and meet Intermediate Care Facility for persons with Developmental Disability level of care are provided services allowing them to remain at home.  Services include home and vehicle modifications for accessibility, adaptive equipment and behavioral intervention and support.
    Support Waiver for Children and Young Adults with Developmental Disabilities information

Equipment Donation and Loaner Programs

  • The Kids Equipment Network
    Pediatric DME Program
    With a volunteer team of therapists, assistive technology specialists and manufacturer representatives, The Kids Equipment Network provides child with appropriately adapted durable medical equipment for their unique need.  They accept donated used equipment.
    Itacsa, IL
    Adaptable Equipment for Children with Special Needs | TKEN
  • Riddick’s Ride Foundation
    Riddick’s Ride provides a way to communicate with and educate others about children with complex medical needs. They have a lending garage where you can borrow durable medical equipment free of charge.
    Riddick’s Ride

What Illinois-specific resources would you like to add or update? Email