Monthly PPMD Carrier Meetings

PPMD recognizes the unique experiences of dystrophinopathy carriers. To better foster a community for learning and connection, PPMD’s Dr. Mena Scavina and Patrick Moeschen invite you to a monthly virtual meeting series featuring members of the PPMD team and the medical community as guest speakers to cover topics in care, research, and community. This group aims to educate and advocate for issues that are important to carriers, whether you have signs and symptoms or not.

Meetings start with a presentation by a variety of specialists with expertise in caring for carriers. Following the presentation there will be time for questions and answers as well as the opportunity to meet other carriers and to share your story. All carriers are welcome – we look forward to seeing you there.

To register for upcoming meetings, please see below. Is there a topic not listed that you are interested in? We want to hear from you! Reach out to us with suggestions or questions at careteam@parentprojectmd.org.

Upcoming Carrier Meetings:

Join us at PPMD’s 2026 Annual Conference for in-person Carrier specific topics & connections.

Previous Meetings:

  • September 2024 — Recording of Dr. Loralei Thornburg’s presentation
  • January 2025: Dr. Michaela Guglieri (Newcastle Upon Tyne Hospital, UK)
    • International Survey on Clinical Presentation and Service Provisions for Female Carriers of DMD Variants (DMD-Carriers) to Inform Care [Watch Recording]
  • February 2025: Community Discussion
  • March 2025: Jessica Hallam MSN, FNP-C (Virginia Commonwealth Health)
  • April 2025: Dr. Lauren Elman (Penn Medicine)
    • Neurologic Care for Carriers
  • May 2025: Dr. Shaida Khan (Parkland Memorial Hospital/UT Southwestern)
  • June 2025: PPMD Annual Conference- Las Vegas, NV
    • Sharing Lived Experiences
    • Updates in Research and Care for Carriers [Watch Recording]
  • September 2025: Advocacy, Newborn Screening, and PPMD’s Lighthouse Workshops [Watch Recording]
  • October 2025: UPenn Carrier Clinic Learnings & Updates with Dr. Teresa Wang [Watch Recording]
  • November 2025: Carrier Testing & Considerations in Young Females with PPMD’s Kayla Banks [Watch recording]