During this webinar, PPMD’s Duchenne Registry team explores how families like yours are driving research and care progress through the Duchenne Registry—PPMD’s long-standing, family-reported research initiative for Duchenne and Becker muscular dystrophy and carriers.

Hear from PPMD Founding President and CEO Pat Furlong as she shares the vision behind the Registry’s creation. Learn how your participation is accelerating breakthroughs, directly improving care, and shaping the future of Duchenne and Becker therapies. We also hear from families who have contributed to the Registry, sharing personal stories about why it matters—and what’s coming next for this powerful, evolving resource.