News Update - eNews

End Duchenne eNews: Every Single Step

Catch up on the latest research and community updates in this month's End Duchenne eNews.
August 15, 2016 | Learn more 

News Update

PPMD Sends Letter to FDA Regarding Duchenne Therapies

PPMD has sent a letter to the FDA requesting updates on various regulatory actions of tremendous importance to the Duchenne community. 
August 11, 2016 | Learn more 

News Update

[Webinar Recording] PTC Therapeutics Provides Regulatory Update on Translarna

PPMD recently hosted a webinar with PTC Therapeutics to discuss the latest news regarding Translarna and the path forward for the therapy with the FDA.
August 5, 2016 | Learn more 

News Update

Help the Powers Family #TackleDuchenne!

The 9th Annual Coach To Cure MD on September 24 is shaping up to be our biggest year yet! Duchenne mom Kim Powers shares why this is the year you should get in the game and help us #TackleDuchenne.
August 4, 2016 | Learn more 

News Update

2016 Connect Conference Resources & Recordings

We are excited to share with you presentations from PPMD’s 22nd Annual Connect Conference! We will continue to update this page over the coming weeks with slides and video content.
July 26, 2016 | Learn more 

News Update

[Webinar Recording] What is CRISPR/Cas9?

PPMD welcomed Dr. Eric Olson from UT Southwestern Medical Center to discuss the basics of gene editing and the potential permanent correction of Duchenne mutations with CRISPR/Cas9.
July 20, 2016 | Learn more 

News Update

Every Single Connection

PPMD works tirelessly to arm you with information and resources through the PPMD Connect Conference, our Every Single One Tour meetings, or even virtual events like webinars, so that you can advocate for your child... so that your voice is heard.
July 19, 2016 | Learn more 

PPMD Receives Grant from Marathon Pharmaceuticals to Help Support Acclaimed Certified Duchenne Care Center Program

The grant will enable PPMD to provide additional resources to improve patient care and patient recruitment for clinical trials through the centers.
June 28, 2016 | Learn more 

News Update

Join the 2016 #PPMDConnect Conference Online!

Unable to attend this year's Annual Connect Conference in Orlando? Join us online! PPMD will be live streaming and our DuchenneConnect team will be live tweeting updates June 26-28.
June 23, 2016 | Learn more 

News Update

PPMD Awards The Ohio State University Grant to Support Cardiomyopathy Therapy for Duchenne

Heart issues don't just affect some people with Duchenne; they affect all people with Duchenne. PPMD is so grateful to the work being done at institutes like The Ohio State University and we are proud to support Dr. Guttridge.
June 22, 2016 | Learn more 

News Update

Understanding Gene Therapy & CRISPR/Cas9

Find out more about the latest in gene therapy, CRISPR/Cas9, and what these technologies could mean for Duchenne during three different opportunities this summer that promise to provide an in-depth analysis.
June 20, 2016 | Learn more 

 
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