Important Vaccinations Recommendations
Vaccinations are important to protect us against infection and disease but they are also confusing. Adding Duchenne medications, pulmonary, and cardiac function to the picture adds even more confusion. In order to answer the regularly asked questions, “to give or not to give, when to give, how to give and what to give,” we have teamed up with the CDMD at UCLA to provide recommendations.
BMS & The Voice of the Patient
It is a good day when a global biopharmaceutical company commits to focusing on Duchenne. We are grateful that Bristol-Myers Squibb (BMS) has added another possibility for our toolbox of hope!
End Duchenne eNews: New Year, Same Mission
Catch up on the latest research and community updates in this month's End Duchenne eNews!
Meet Our 2015 PPMD Adult Advisory Council
The PPMD Adult Advisory Council (PAAC) serves to ensure that the voices of adults living with Duchenne and Becker muscular dystrophy are reflected in PPMD’s legislative, policy, and program activities. PAAC members serve in a formal advisory capacity for their respective term and maintain leadership over a PAAC initiative throughout that term; PAAC initiatives are determined by the PAAC membership and PPMD Executive Team.
PPMD Welcomes New CEO, John Porter, PhD
PPMD is thrilled to welcome our new CEO, Dr. John Porter! As CEO, John will help PPMD continue to integrate programs to maximize impact, building upon current programs and exploring opportunities to expand the research pipeline, with the goal of accelerating progress and approvals. John joins PPMD Founding President Pat Furlong and Chief Operating Officer, Kimberly Galberaith, in leading the organization. As founding president, Pat will continue to provide strategic direction of PPMD in support of the mission she helped set forth 20 years ago in honor of her sons and all families affected by Duchenne.
Update on the 2015 Flu
Even after receiving vaccination, many people are still contracting the flu this season. Read an update on the latest flu strains as well as important information on how to treat the flu if you or your child has Duchenne.
Thank You! Strength Happens Together!
In early December, we asked you to help PPMD raise $400,000 for combination therapies an innovative approach to treating Duchenne. It was an ambitious goal for an ambitious project. And, thanks to YOU, we did it! In fact, we surpassed it, raising more than $430,000. Thank you to everyone who donated, thank you to Cure Dale’s Duchenne, and thank you to Rally for Ryan. Strength happens together. And together, we will end Duchenne.
Heart Failure Drugs Slow Deadly Damage in Duchenne, Offering New Hope
In a new study led by Dr. Subha Raman of The Ohio State University Wexner Medical Center, researchers were able to dramatically slow the rate of heart damage in patients with Duchenne muscular dystrophy by using a combination of well-established drugs. Thank you for helping PPMD fund this promising research!
Now is the time for strength.
Early next year, we plan to fund a group of research projects that, together, we believe will help us take a big step forward in ending Duchenne. We need to raise $400,000 before year-end to make that funding possible. The time is now to push that progress forward in a big way.
Webinar Recording: Combination Therapies
On Wednesday, December 17th, PPMD hosted a webinar to discuss combination therapies -- a group of research projects that, together, we believe will help us take a big step forward in ending Duchenne. As you know, combination therapies are the focus of PPMD’s annual holiday campaign.
The Solid Suit: Combining Forces to Enhance Strength
PPMD is excited to announce a collaboration with Solid Ventures to engage SRI International in the research and development of the “Solid Suit,” a soft, wearable assistive device for people with Duchenne.