

Connect with us! Register for the 2012 Annual Connect ConferenceThe clock is ticking and the
Annual Connect Conference in Ft. Lauderdale, FL,
June 28 - July 1, 2012 will be here before you know. Register today to participate in the most comprehensive and important annual meeting in the Duchenne community, and take advantage of our Early Bird Special, now through May 21! Scientists Discover Clues to Muscle Stem Cell FunctionsA study conducted by Children’s Hospital & Research Center Oakland scientists identifies how skeletal muscle stem cells respond to muscle injury and may be stimulated to improve muscle repair in Duchenne. The study, led by Julie D. Saba, MD, PhD, senior scientist at Children’s Hospital Oakland Research Institute (CHORI), shows that a lipid signaling molecule called sphingosine-1-phosphate or “S1P” can trigger an inflammatory response that stimulates the muscle stem cells to proliferate and assist in muscle repair.
We need your voice to help save important Duchenne programs at the CDC!The Administration's Fiscal Year 2013 budget request again proposes to consolidate muscular dystrophy and other programs within the CDC.
Efforts to consolidate these activities threaten to slow down the gains we have made in treating Duchenne, including our current challenge of updating and reissuing the care considerations to reflect care needs of adults with Duchenne.
It only takes one minute to fill out our form and contact your members of Congress today! Bradykinin restores left ventricular function, sarcomeric protein phosphorylation and e/nNOs levels in dogs with Duchenne cardiomyopathyCardiomyopathy in GRMD dogs is characterized by profound LV subendocardial dysfunction, abnormal sarcomeric protein phosphorylation and impaired endothelial and neuronal nitric oxide synthase, which can be normalized by bradykinin treatment. These data provide new insights into pathophysiological mechanisms accounting for Duchenne cardiomyopathy and open new therapeutic perspectives.
End Duchenne eNews - May 2012April was a busy month, with an incredibly successful West Coast Connect Meeting in San Diego and a trip down into the Grand Canyon, as we took part in our first Conquer the Canyon event. We head into May, with plans underway for an amazing Annual Connect Conference in Ft. Lauderdale and an agenda that is like nothing we've done before. And we introduce you to a remarkable young person, Cory Stalling who is working with his parents to raise awareness by using social media and building a team of supportive runners! |
PPMD President Pat Furlong and Colorado FACES coordinator, Ivy Scherbarth try to sort through priorities and what in our lives deserves more of our time and energy. May 6, 2012 | Read More ![]()
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