Certified Duchenne Care Center

PPMD Names Massachusetts General Hospital a Certified Duchenne Care Center

Parent Project Muscular Dystrophy has named Massachusetts General Hospital (MGH) our sixth Certified Duchenne Care Center, recognizing the Hospital’s dedication to improving care for people living with Duchenne.
December 16, 2014 | Learn more 

News Update - eNews

End Duchenne eNews: Finding Strength

Catch up on the latest research and community updates in this month's End Duchenne eNews!
December 15, 2014 | Learn more 

News Update - Vial

Upcoming Webinar: Combination Therapies

PPMD is hosting a webinar on Wednesday, December 17th at 1PM EST to discuss combination therapies -- a group of research projects that, together, we believe will help us take a big step forward in ending Duchenne. As you know, combination therapies are the focus of PPMD’s annual holiday campaign.
December 15, 2014 | Learn more 

News Update

Let's Combine Our Efforts

This holiday season, we’re asking for your help in reaching an ambitious goal of raising $400,000 to advance combination therapies in Duchenne. In less than two weeks we have already raised $128,000. But now, thanks to the generosity of two foundations, we can get to our goal that much quicker! Donate today and have your gift matched dollar for dollar.
December 13, 2014 | Learn more 

News Update - Vial

PPMD To Collaborate With Catabasis Pharmaceuticals, Inc. On CAT-1004 Development

PPMD announced today a collaboration with Catabasis Pharmaceuticals, Inc. to assist in a Phase 2 clinical trial of its CAT-1004 product candidate for the treatment of patients with Duchenne. As part of this collaboration, PPMD will provide funding to support participant travel. The trial is expected to begin in the first half of 2015.
December 11, 2014 | Learn more 

News

PPMD Calls for Greater Transparency and Accountability of FDA Patient Engagement Efforts

PPMD is convening a Congressional Briefing tomorrow at noon to present reform proposals for the 21st Century Cures Initiative. Urge your members of Congress to join us!
December 8, 2014 | Learn more 

News

PPMD Awards Akashi Therapeutics, Inc. $500,000 Grant

PPMD has awarded Akashi Therapeutics, Inc. (Akashi) a $500,000 grant to fund clinical trials to test the safety and efficacy of an investigational new drug known as HT-100 (delayed-release halofuginone).
December 8, 2014 | Learn more 

critical-markup-nws

ABLE Act Changes Disability Landscape –
This just got real!

Thank you to the House of Representatives for voting in favor of civil rights for Americans with disabilities today by passing the ABLE Act (S. 313/ HR 647)! With legendary bipartisan support in both the House and Senate, the ABLE Act amends Section 529 of the Internal Revenue Service Code of 1986 to create tax-free savings accounts for individuals with disabilities.
December 3, 2014 | Learn more 

Play

Webinar Recording & Summary: Duchenne Pulmonary Care for Adults

A summary and recording of last week's pulmonary care webinar is now available. Thank you to Dr. Daniel Sheehan and Dr. Lisa Wolfe for such an informative discussion.
December 3, 2014 | Learn more 

Combine therapies. Combine forces.

Combine therapies. Combine forces.

In 2015, PPMD will invest $600,000 to further the advancement of combination therapies in Duchenne. To start, we need to raise $400,000 this holiday season. We know that sounds big, but thanks to our partners, it’s within reach—every gift today goes twice as far thanks to two Duchenne foundations that, like us, believe in the importance of combined therapies to treat this horrible disease.
December 1, 2014 | Read more 

 
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Two generous Duchenne foundations will match your donation dollar for dollar to help us reach our goal: $400,000 to advance combination of therapies that, together, can make a difference for every person with Duchenne.

Make a tax-deductible donation and give us the strength we need to end Duchenne.

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