In November 2025, South Dakota’s newborn screening advisory committee voted to recommend Duchenne to the state’s newborn screening panel. Our advocacy efforts are currently focused on supporting the state newborn screening team in the next steps, which includes validating (checking the accuracy of) the CK-MM test in the laboratory that coordinates all of South Dakota’s newborn screening. After validation, the recommendation to add Duchenne to the panel will go to the state legislature for approval.
Please submit our interest survey to learn how you can get involved in supporting these efforts in your state.
In November 2025, South Dakota’s newborn screening advisory committee voted to recommend Duchenne to the state’s newborn screening ... Please submit our interest survey to learn how you can get involved in supporting these efforts in your state.
Read MoreIf you are interested in supporting state or federal efforts for Duchenne newborn screening, sign up to become a PPMD Advocate.
Download resources to support Duchenne newborn screening efforts
