Blog

PPMD Awards $50,000 to the University of Pennsylvania for Launch of Duchenne and Becker Carrier Clinic Pilot

PPMD has always prioritized and advocated for optimal care for every person living with Duchenne and Becker. This began with the development of the care considerations, which translated into the standards by which PPMD’s Certified…

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PPMD’s Certified Duchenne Care Center Program – 2021 Impact & Progress

Every single person living with Duchenne deserves the best care possible. It is important that families know who is in charge of delivering the care they need and understand what centers are providing optimal, standardized…

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Action Alert! Support Progress in the Fight to End Duchenne

Urge your House and Senate Members to Support the FY 2023 Duchenne Funding Request & BENEFIT Act Today, during PPMD’s 2022 Advocacy Conference: Virtual Fly-In, over 260 advocates will be participating in 240+ virtual meetings…

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Race Athlete Spotlight: Austin Hogan

This year, Austin Hogan ran the Houston Half Marathon as part of the Race to End Duchenne team. Meet Austin Why did you choose to join the Race to End Duchenne team? Our family friend…

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February 22, 2022

PPMD’s Power of Us Summit Series: Caregiver registration is now open!

The Power of Us Summit Series — Registration for Parents, Grandparents & Caregivers Is Now Open! April 28-30, 2022 | Atlanta, GA The Power of Us is stronger than any of us alone. Over the…

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February 11, 2022

Connect with PPMD’s Care Team

At PPMD, we place immense value on personal connection with the Duchenne community to provide support and partner with you on this complex journey. As our organization continues to grow, we aim to remain present,…

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February 4, 2022

WATCH: FibroGen DMD Pamrevlumab Phase 3 Clinical Studies Highlight (Webinar Recording)

FibroGen joined PPMD for a webinar on February 2, 2022. During the webinar, FibroGen discussed the clinical rationale for the use of Pamrevlumab by highlighting its Phase 2 study in non-ambulatory participants with Duchenne and…

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February 3, 2022

New Study to Understand Duchenne Patients’ and Caregivers’ Attitudes Towards Gene Therapy Launched

In a new transatlantic collaboration, Parent Project Muscular Dystrophy (PPMD) and Duchenne UK (DUK), the DMD Hub, and RTI International are conducting a study to explore attitudes towards gene therapy and gene editing from adults…

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February 1, 2022

Join PPMD’s Virtual Advocacy Conference on March 8

Want to be part of history? Want to contribute to future progress in understanding, diagnosing, and treating Duchenne? Join PPMD’s Virtual Fly-In: Tuesday, March 8, 2022 Each year, PPMD ensures that the Duchenne community is…

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January 26, 2022

Save the Date for PPMD’s Upcoming Events!

PPMD is excited to announce our 2022 schedule of educational events, including PPMD’s Annual Conference (hybrid in-person & virtual meeting), End Duchenne Tour (both in-person and virtual stops), and Advocacy Conference (virtual). New this year, PPMD will host The Power of…

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