Blog

Jumping Jack Events to End Duchenne Turns 15

For 15 years, the Knight family of Westminster, Colorado has been supporting PPMD’s mission by hosting their annual Jumping Jack Events every June for 15 years now! Named after their son, 17-year—old Jack Knight, Jumping Jack Events started as…

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End Duchenne Tour Recap: Birmingham, AL

PPMD was very happy to have the opportunity to meet the team from Children’s Hospital of Alabama and all of the families that came out to our End Duchenne Tour stop on June 6 in the…

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Join the Race to End Duchenne

We are thrilled to announce the launch of the new name and look for our endurance program, Race to End Duchenne. This new name reflects the dynamic nature this program has taken on over the…

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Race Athlete Spotlight: Catie Sims

Catie Sims met Garrett Sapp and his family several years ago when she decided to turn her love of running into a way to help others. Since then she has become part of the Sapp…

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End Duchenne Tour Recap: St. Paul, MN

On Saturday, April 28, PPMD had the pleasure of hosting the End Duchenne Tour in St. Paul, MN at Gillette Children’s Specialty Healthcare. This was our first tour visit to St. Paul and we are…

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PPMD’s 2018 Annual Conference Agenda is Now Available!

PPMD is excited to unveil the agenda for our 2018 Annual Conference in Scottsdale, AZ, June 28 – June 30, 2018! Each year, PPMD works hard to put together a comprehensive agenda featuring updates in…

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End Duchenne Tour Recap: Grand Rapids, MI

PPMD was excited to head to the Midwest for the second stop on the 2018 End Duchenne Tour. The event took place at Western Michigan University in Grand Rapids, Michigan, in partnership with Team Joseph, Little…

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PPMD’s Historic Compass Meeting

There are hardly words to capture the impact our unified community had on Monday. We had traveled from all over the nation to convene with federal policymakers, industry partners, and payers for the Duchenne Patient-Focused Compass…

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February 15, 2018

End Duchenne Tour Recap: Morristown, NJ

PPMD kicked off the 2018 End Duchenne Tour with a stop in our very own backyard – Goryeb Children’s Hospital in Morristown, New Jersey! PPMD was extremely grateful to partner with Michael’s Cause, Pietro’s Fight, Powers Promise,…

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January 17, 2018

Meet the 2018 PPMD Adult Advisory Committee (PAAC)

In January of 2014 we held our inaugural PAAC Leadership Workshop in Washington,DC. The day included engagement with federal policy makers, congressional staff, and research leaders. At the end of the day, a long-time…

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