August 18, 2025

Expanding Leadership, Accelerating Progress

Dear PPMD Community, For more than thirty years, I have had the honor of standing beside you—parents, families, clinicians, researchers, and advocates—united in a single purpose: to end Duchenne and Becker muscular dystrophy, and to…

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August 12, 2025

Calling All Adults with Duchenne & Becker: Join the 2026 PPMD Adult Advisory Committee (PAAC)

Have you been looking for a way to engage with the community more? Do you have a personal experience that you would like to share with the larger community or through federal and state advocacy…

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June 10, 2025

Inclusive Summer Activities

As the school year comes to a close, we are all looking forward to a fun-filled summer! We know that planning outings and activities can sometimes feel overwhelming, especially when considering accessibility and necessary accommodations…

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April 2, 2025

Recap: PPMD Together: Minneapolis, MN

This past weekend, PPMD was joined by families, individuals with Duchenne and Becker, clinicians, researchers, industry partners and local vendors for 2 days of community building, knowledge sharing, and meaningful connections at our PPMD Together…

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January 16, 2025

Advance the Research Evolution with The Duchenne Registry

Everyone can help advance the research evolution for Duchenne and Becker. Bringing data sources together from multiple research endeavors is a key component of PPMD’s plan to advance the research evolution, and The Duchenne Registry…

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January 6, 2025

Thank You for Joining us to Advance the Research Evolution

As we enter PPMD’s fourth decade and a new era in Duchenne research, I am once again in awe of this community’s unwavering determination to push boundaries and drive progress. Your generosity continues to propel…

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December 31, 2024

Double your impact in advancing the research evolution by the end of 2024

As the clock winds down on 2024 and we prepare to ring in the new year, I am awestruck by this community’s accomplishments and full of hope for the future. We have important work yet…

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December 31, 2024

Give before midnight TONIGHT to double your impact in developing PPMD’s DCRN

Happy New Year’s Eve! We’re almost there. At midnight we will ring in a new year, one that I hope will bring with it incredible experiences, happy memories, and lots of love. I am passionate…

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December 30, 2024

Together, let’s advance the research evolution

For my fellow adults living with Duchenne and Becker, today’s reality is vastly different from the one we were diagnosed into. We are living longer lives and feeling stronger while doing so. Many of us…

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December 23, 2024

Life is about time and timing when living with Duchenne

As a family living with Duchenne, time is everything to us. Decades of trials and research have paved the way for a new era, ushering in a reality with a growing landscape of both approved…

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