November 27, 2025

A Thanksgiving Message from Pat

This Thanksgiving, I find myself reflecting deeply on gratitude, especially for this incredible community that feels like family. This season always brings a moment to pause, to take stock of where we’ve been and where…

Learn More

November 20, 2025

Closing Out the Year with Connection & Community at PPMD Together

Recently, the Duchenne and Becker community gathered virtually for the final PPMD Together meeting of the year. This intimate session centered on fostering friendships for everyone in the family while living with dystrophinopathy.  The meeting,…

Learn More

November 14, 2025

PPMD Continues to Drive Progress with Your Support

PPMD is committed to every future, working toward the day when every single family has options for, and access to, therapies and specialized care. In 2025, thanks to your support, families are receiving earlier diagnoses,…

Learn More

November 10, 2025

Tips for Smooth Holiday Travel

The holidays are a special time to connect with family and friends, and for many, that involves travel. To help make your journey a little easier, PPMD has gathered some helpful travel tips and resources!…

Learn More

November 7, 2025

Welcoming the New Members of PAAC for Fall 2025

PPMD’s Adult Advisory Committee (PAAC) recently expanded with 19 inspiring new members, bringing the committee to its largest size ever—73 members strong. These incredible individuals bring diverse academic backgrounds ranging from marketing and communication to…

Learn More

October 20, 2025

20th Annual Sam’s Night Event Marks Two Decades of Community Impact, Growth, and Hope for Families Living with Duchenne

The Killian family, of Rockwall, TX, are celebrating a record-breaking fundraising milestone with their annual Sam’s Night event to benefit PPMD. On Thursday, October 16, 2025, the Killian family celebrated 20 years of Sam’s Night—an…

Learn More

October 9, 2025

Catch Up on World Muscle Society 2025

Each year, the World Muscle Society (WMS) Annual Congress brings together the best minds in neuromuscular research, clinical care, patient advocacy, and industry. The meeting offers a dynamic platform for sharing new data, fostering collaborations,…

Learn More

September 25, 2025

Catch Up on PPMD Together: Charlotte

This past weekend, PPMD held its last in person PPMD Together event of 2025 in Charlotte, North Carolina. Over two days, families, individuals with Duchenne and Becker muscular dystrophy, clinicians, researchers, and industry partners gathered…

Learn More

September 11, 2025

Duchenne on the World Stage: World Duchenne Awareness Day at the United Nations

On Friday, September 5th, 2025 I had the honor of speaking at the United Nations to raise awareness and turn hope into action for World Duchenne Awareness Day.  The Permanent Representative of the State of…

Learn More

September 5, 2025

PPMD Kicks Off World Duchenne Awareness Day with Bad Shirt Friday, Special United Nations Documentary Premiere

PPMD will join forces with fellow Duchenne-specific organizations from around the world to celebrate World Duchenne Awareness Day on September 7. This global initiative, spearheaded by the World Duchenne Organization, aims to raise awareness about Duchenne and…

Learn More