Advocacy in Action: Virtual Town Hall
2021 marks the 20th Anniversary of the MD-CARE Act, landmark legislation that launched coordinated federal efforts to confront Duchenne and Becker muscular dystrophy through research, public health, and quality care initiatives.
This congressionally directed federal investment has contributed to significant progress made to date in understanding, diagnosing, and treating Duchenne.
However, our work is not done — we must double down on these efforts to ultimately defeat this devastating disease.
Facebook Live | February 3, 2021
To commemorate the passage of the MD-CARE Act, PPMD will host a Virtual Town Hall on Wednesday, February 3, 1 PM – 4 PM ET to look back on past accomplishments and progress made possible by Duchenne advocates, as well as looking ahead at work yet to be done in this new era.
The agenda will feature panel discussions by NIH, FDA, and CDC leadership, personal reflections from our Duchenne Senate and House Champions, as well as reflections from community members, families and friends who have been influential in our progress in Washington D.C.
You won’t want to miss this informative and inspiring event open for all to join!RSVP on Facebook >