Join PPMD’s 2023 Advocacy Conference

Want to be part of history? Want to contribute to future progress in understanding, diagnosing, and treating Duchenne?


Each year, PPMD ensures that the Duchenne community is at the forefront of the hearts and minds of Congressional leaders and champions in Washington, DC by convening our annual Advocacy Conference at the start of the annual Appropriations season. These efforts help to ensure that — while Duchenne may be a rare disease — we are central to the considerations of policy makers.

Over the last 21 years, Duchenne Advocacy has resulted in…

  • Over $650 million in funding for Duchenne related programs at the National Institutes of Health, Center for Disease Control, and Department of Defense.
  • A standard of care established and recently updated for all those diagnosed with Duchenne, which has markedly improved the quality of life and extended lifespan.
  • An ever-growing Duchenne drug development pipeline with over 40 companies developing drugs for Duchenne.

2023 Details

We are excited to announce that in 2023 not only will we be back in person in Washington, DC, but this year will mark our first hybrid Advocacy Conference. Click here to learn more and register.