Join PPMD’s 20th Anniversary of Advocacy in Action

2021 marks the 20th Anniversary of the MD-CARE Act, landmark legislation that launched coordinated federal efforts to confront Duchenne and Becker muscular dystrophy through research, public health, and quality care initiatives.

This congressionally directed federal investment has contributed to significant progress made to date in understanding, diagnosing, and treating Duchenne.

However, our work is not done — we must double down on these efforts to ultimately defeat this devastating disease.

Key Dates

Advocacy Training

An online training session will occur Tuesday, March 2 from 6:00 PM - 8:00 PM ET

Registration Deadline

Please register by Friday, March 5 to ensure time to schedule meetings. Click here to register for the Virtual Advocacy Conference.

Virtual Fly-In

Meetings with congressional offices will be scheduled for Wednesday, March 10
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2021 Advocacy Conference: Virtual Fly-In | March 10

Want to be part of history? Want to contribute to future progress in understanding, diagnosing, and treating Duchenne?

Join us on Wednesday, March 10 for PPMD’s 2021 Advocacy Conference: Virtual Fly-In. While we might not be able to be face-to-face in Washington, DC this year, we are still able to make our voices heard.

Over the last 20 years, Duchenne Advocacy has resulted in…

  • Over $600 million in funding for Duchenne related programs at the National Institutes of Health, Center for Disease Control, and Department of Defense.
  • A standard of care established and recently updated for all those diagnosed with Duchenne, which has markedly improved the quality of life and extended lifespan.
  • An ever growing Duchenne drug development pipeline with over 40 companies developing drugs for Duchenne.

There is no travel or financial expense associated with this virtual event. Only your time and energy are needed to join a movement and help keep Duchenne as a priority in our legislative environment.

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Never Advocated Before?

No problem! 25 percent of our attendees every year are brand new advocates. With this year’s virtual format, now is the perfect time to dip your toe into the advocacy waters! PPMD will get you well prepared with online educational training sessions ahead of your meetings.

Questions?

Please do not hesitate to email advocacy@parentprojectmd.org with any questions.