PPMD’s Advocacy Conference

Join Parent Project Muscular Dystrophy (PPMD) and raise your voice at our Advocacy Conference in Washington, DC.

Held in the first quarter of each year, PPMD’s Advocacy Conference is the only officially organized gathering on Capitol Hill for the Duchenne community. It grows each year, with more and more attendees meeting their representatives and staffers, giving a face and a voice to our advocacy agenda.

Over the course of three days, scheduled visits on Capitol Hill are arranged for all attendees to meet with the offices of their Congressional members and tell their stories. People with Duchenne and their families use their voice to ensure policy makers understand the urgency and need for federal focus and funding on Duchenne care and research.

Never Advocated Before?

No problem! 25 percent of our attendees every year are brand new advocates. PPMD will get you well prepared for your meetings and you will be with other experienced family advocates while on the hill.

Please do not hesitate to email advocacy@parentprojectmd.org with any questions or if you are interested in attending our yearly Advocacy Conference.

Save the Date for 2019!

Our next event will be in Washington, D.C. February/March 2019. Make sure you are signed up on our email list to be notified when registration opens.