Join PPMD’s 2022 Advocacy Conference

Want to be part of history? Want to contribute to future progress in understanding, diagnosing, and treating Duchenne?


Each year, PPMD ensures that the Duchenne community is at the forefront of the hearts and minds of Congressional leaders and champions in Washington, DC by convening our annual Advocacy Conference (this year, virtually once again) at the start of the annual Appropriations season. These efforts help to ensure that — while Duchenne may be a rare disease — we are central to the considerations of policy makers.

Key Dates

Advocacy Training

PPMD will host an online training session on Thursday, March 3rd from 6pm - 8pm ET.

Registration Deadline

Please register by Friday, March 4th to ensure time to schedule meetings. Click here to register for the Virtual Advocacy Conference.

Virtual Fly-In

Meetings with congressional offices will be scheduled for Tuesday, March 8th between 9am and 5pm ET.

Helpful Resources for Advocates

Over the last 21 years, Duchenne Advocacy has resulted in…

  • Over $650 million in funding for Duchenne related programs at the National Institutes of Health, Center for Disease Control, and Department of Defense.
  • A standard of care established and recently updated for all those diagnosed with Duchenne, which has markedly improved the quality of life and extended lifespan.
  • An ever-growing Duchenne drug development pipeline with over 40 companies developing drugs for Duchenne.

There is no travel or financial expense associated with this virtual event. Only your time and energy are needed to join a movement and help keep Duchenne as a priority in our legislative environment.

Register Now >