Join PPMD’s 2023 Advocacy Conference

Want to be part of history? Want to contribute to future progress in understanding, diagnosing, and treating Duchenne?

SAVE THE DATE FOR PPMD’S 2023 ADVOCACY CONFERENCE, MARCH 5-7

Each year, PPMD ensures that the Duchenne community is at the forefront of the hearts and minds of Congressional leaders and champions in Washington, DC by convening our annual Advocacy Conference at the start of the annual Appropriations season. These efforts help to ensure that — while Duchenne may be a rare disease — we are central to the considerations of policy makers.

Over the last 21 years, Duchenne Advocacy has resulted in…

  • Over $650 million in funding for Duchenne related programs at the National Institutes of Health, Center for Disease Control, and Department of Defense.
  • A standard of care established and recently updated for all those diagnosed with Duchenne, which has markedly improved the quality of life and extended lifespan.
  • An ever-growing Duchenne drug development pipeline with over 40 companies developing drugs for Duchenne.

2023 Details

We are excited to announce that in 2023 not only will we be back in person in Washington, DC, but this year will mark our first hybrid Advocacy Conference.

There is no substitution for being face-to-face in Washington, DC. Our focus for the 2023 Advocacy Conference will first be on securing as many advocates and in-person Hill visit meetings as we possibly can, to make our voices heard in our nation’s Capitol. Once the in-person Advocacy Conference wraps up, we will then coordinate with our at-home advocates to fill in gaps with virtual meetings. Dates and availability for these virtual meetings may be limited.

Our 2023 Advocacy Conference will be held at The Dupont Hotel in Washington, DC, March 5-7. The schedule will include:

  • Sunday, March 5th: Advocacy Training will begin in the early afternoon
  • Monday, March 6th and Tuesday, March 7th: Meetings and various events; ending time no later than 4:30 pm on March 7th.

Registration

The registration to attend PPMD’s Advocacy Conference is free and we hope that you are able to make it to DC with us. Registration and hotel accommodations will open in mid-January.

More information on the virtual component, including dates and format, will be available in the near future.

No matter what, we need you this March! Your voice, your actions, your advocacy makes a difference. Your efforts will help to ensure that — while Duchenne may be a rare disease — we are central to the considerations of policymakers.