July 16, 2020

Celebrating PPMD’s “Change It Champion” Award-Winner Claudia Senesac, PT, PhD, PCS

Celebrating PPMD’s “Change It Champion” Award-Winner Claudia Senesac, PT, PhD, PCS PPMD is excited to celebrate our recent Change It Champion Award-winner Claudia Senesac, PT, PhD, PCS, from University of Florida, in recognition of her…

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July 14, 2020

Win a NEW Smartphone!

Win a NEW Smartphone! During PPMD’s Virtual Annual Conference in July, The Duchenne Registry will be giving away a brand new smartphone (iPhone or Android) to one lucky registrant! All you have to do is…

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July 14, 2020

WATCH: Family Friday – Creating a Unique Virtual Conference Experience

Family Friday: Creating a Unique Virtual Conference Experience With PPMD’s Annual Conference going virtual this year, we wanted to explore ways each family could tailor their conference experience to suit their needs and interests. During…

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July 13, 2020

PPMD’s 2020 Virtual Conference – Our Hub is Live!

PPMD’s 2020 Virtual Conference – Our Hub is Live! If you haven’t registered for PPMD’s 2020 Virtual Annual Conference — now’s the time to do so! Our Conference Hub is now open! This is your opportunity to create…

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July 7, 2020

PPMD Signs Onto Telehealth Letter to Congress

PPMD is proud to have joined 340 organizations in signing a letter urging Congressional leaders to make telehealth flexibilities created during the COVID-19 pandemic, permanent. The letter sent a powerful message to Congress outlining the…

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July 7, 2020

NS Pharma Announces Launch of Patient Support Hub

NS Pharma, Inc. announced the launch of NS Support for patients with Duchenne and their healthcare providers. NS Support will provide a resource for patients and doctors to get more information once NS Pharma has…

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July 2, 2020

Sarepta Therapeutics Signs Agreement with Hansa Biopharma for Imlifidase

PPMD is encouraged to learn that Sarepta Therapeutics announced an agreement with Hansa Biopharma, a company that has developed an IgG antibody-cleaving enzyme called imlifidase. Imlifidase is an investigational product initially developed to aid in…

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July 1, 2020

PPMD’s 2020 Virtual Annual Conference Agenda – Now Available!

PPMD’s 2020 Virtual Annual Conference Agenda – Now Available! PPMD is excited to unveil our full agenda for the 2020 Virtual #PPMDConference, July 22-25! This summer continues to be an unprecedented time for our global community,…

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June 30, 2020

Applications Open for PPMD and Duchenne UK $1 Million Joint Research Grant Call for Gene Therapy

PPMD is thrilled to announce our partnership with Duchenne UK to launch a joint 2020 Research Grant Call, inviting research proposals for submission and review. Up to $1 million (US) is committed to a project…

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June 29, 2020

WATCH: Family Friday – When You’re a Carrier

Family Friday: When You’re a Carrier Learning that you are a female carrier of Duchenne can be shocking, overwhelming, and confusing. During our June 26, 2020 Family Friday on Facebook Live, we were joined by…

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