December 27, 2022

Double Your Gift Today.

Being a twin brings with it a unique closeness that few are lucky enough to experience. Having a sibling with Duchenne adds an additional layer to the relationship that is unique as well. I love…

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December 21, 2022

WATCH: Protect Your Lungs This Winter (Webinar Recording)

Connect With the Experts – Pulmonary Management in Winter Season As we embark into the winter season, it’s imperative that individuals with Duchenne and Becker muscular dystrophy are prepared to manage their pulmonary health and…

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December 21, 2022

Help Hearts Grow Stronger and have your gift MATCHED through 12/31!

My son Logan is 10 years old. He is sharp, bright and curious, and it’s amazing to me to watch his brain at work. He has never once let Duchenne slow him down mentally, however…

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December 20, 2022

Entrada Therapeutics Announces Clinical Hold on IND Application for ENTR-601-44 in Duchenne

Entrada Therapeutics has shared that the FDA issued a clinical hold on the Investigational New Drug (IND) application for its ENTR-601-44 program, an exon-skipping therapy set to target individuals with Duchenne amenable to exon 44…

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December 19, 2022

WATCH: A Conversation with PTC Therapeutics (Webinar Recording)

WATCH: A Conversation with PTC Therapeutics (Webinar Recording) PTC Therapeutics recently joined PPMD for a community webinar on Friday, December 9, 2022 for a discussion regarding PTC’s history with the community and plans for the…

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December 15, 2022

Give Today to help my Heart Grow Stronger

I was diagnosed with Duchenne muscular dystrophy at three years old. It was the late 90’s and PPMD was just beginning to grow as an organization. We found Pat Furlong and through her were connected…

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December 14, 2022

Back in Washington, DC! PPMD’s Advocacy Conference Returns March 5-7

Want to be part of history? Want to contribute to future progress in understanding, diagnosing, and treating Duchenne? Register today to join PPMD’s 2023 Advocacy Conference, March 5-7th, in Washington, DC! We are excited to announce…

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December 12, 2022

The Duchenne Registry Celebrates 15 Years of Data Collection

The PPMD team is incredibly grateful for the families who have shared their Duchenne and Becker experience with The Duchenne Registry over the years. It is hard to believe that the first families joined the…

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December 8, 2022

Your Gift Today Funds ACTION

As a cardiologist, I think about the heart day and night. It is central and fundamental to all of us. We must protect and preserve the heart so that individuals with Duchenne or Becker can…

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December 6, 2022

Complete Your Registry Surveys and You Could Win Your Choice of a $150 Holiday Gift Card!

It’s the Holiday Season and we are thrilled to have another great raffle for families who participate in The Duchenne Registry! This December, the Registry will be giving away TWO $150 e-gift cards to the…

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