End Duchenne [Remote] Tour: Boise, ID
REGISTER FOR COMMUNITY ZOOM MEET AND GREET
OCTOBER 22nd 10:00-11:30am MT
Join us for a community Zoom meet up for Duchenne families and members of the PPMD team to talk, listen, and provide support on topics previously identified through our community survey. This gathering will be informal, conversational, and can be used to have your individual questions answered. Click here to register.
Pre-Recorded Presentations
Genetics
Questions?
coordinator@parentprojectmd.org
Research Overview
Questions?
eric@parentprojectmd.org
Care Resources
Questions?
careteam@parentprojectmd.org
PPMD Advocacy
Questions?
lauren@parentprojectmd.org
EDGEWISE
Questions?
info@edgewisetx.com
ITALFARMACO SPA
Questions?
patientadvocacy@italfarmacogroup.com
NS Pharma
Questions?
patients@NSPharma.com
PTC Therapeutics
Questions?
csalgado@ptcbio.com
Sarepta Therapeutics
Questions?
advocacy@sarepta.com
Additional Contact Information
- Edgewise: info@edgewisetx.com
- Italfarmaco: patientadvocacy@italfarmacogroup.com
- NS Pharma: patients@nspharma.com
- Pfizer: jennifer.a.hoge@pfizer.com
- PTC: csalgado@ptcbio.com
- Regenxbio: duchenne@regenxbio.com
- Santhera: mike.stevenson@santhera.com
- Sarepta: advocacy@sarepta.com
