September 24, 2020

WATCH: Resiliency in Results – What We Learn When Trials Are Terminated (Webinar Recording)

No other community knows the importance of resiliency like the Duchenne community, as highlighted by our communal commitment to ensure that all people living with Duchenne have access to safe, accessible therapies. Clinical trials are…

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September 2, 2020

WATCH: NS Pharma Announcement of VILTEPSO (viltolarsen) – Webinar Recording

NS Pharma joined PPMD for a webinar on August 26, 2020 to provide an update about VILTEPSO™ from Ben Yungher, PhD, NS Pharma’s Medical Science Liaison, and its associated patient support program from Randy McGonigal,…

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August 26, 2020

PPMD’s 2020 Back-To-School Webinar Series – Resources & Takeaways

PPMD’s 2020 Back-To-School Webinar Series – Resources & Takeaways As we look towards this next school year, PPMD recognizes that our community is facing new and difficult choices about in-person and virtual learning. To help…

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August 7, 2020

WATCH: Family Friday – Do It Your Way & End Duchenne

Family Friday: Do It Your Way & End Duchenne Although COVID-19 has changed how we conduct events and socialize within our communities, it doesn’t change the fact that you can still support PPMD’s mission. Duchenne doesn’t…

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July 30, 2020

Join PPMD’s Back-To-School Webinar Series

Join PPMD’s Back-To-School Webinar Series Join us for PPMD’s back-to-school webinar series tackling questions and concerns the community has about both in-person and virtual learning environments. PPMD’s Care Team will be joined by leading experts…

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July 14, 2020

WATCH: Family Friday – Creating a Unique Virtual Conference Experience

Family Friday: Creating a Unique Virtual Conference Experience With PPMD’s Annual Conference going virtual this year, we wanted to explore ways each family could tailor their conference experience to suit their needs and interests. During…

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June 29, 2020

WATCH: Family Friday – When You’re a Carrier

Family Friday: When You’re a Carrier Learning that you are a female carrier of Duchenne can be shocking, overwhelming, and confusing. During our June 26, 2020 Family Friday on Facebook Live, we were joined by…

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June 22, 2020

WATCH: Family Friday – Navigating Your Neuromuscular Team

Family Friday: Navigating Your Neuromuscular Team For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family Fridays to discuss…

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June 19, 2020

WATCH: Antisense Therapeutics Phase II Trial Final Data Results – Webinar Recording

Antisense Therapeutics recently announced that their Phase II clinical trial of ANP’s immunomodulatory therapy, ATL1102 for Duchenne in non-ambulatory patients has met its primary endpoint, confirming the safety and tolerability of ATL1102 for advancement into…

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June 15, 2020

WATCH: Family Friday – Advocating for Yourself in Research

Family Friday: Reflecting on Adjusting to a New Diagnosis For many of us, self-quarantine is in full swing, and adjusting to a different family structure may be overwhelming. So your PPMD family is launching Family…

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