Meet the Board

Parent Project Muscular Dystrophy’s Board of Directors is made up of parents, grandparents, family members, and friends of those living with Duchenne. Unlike many nonprofits, PPMD’s Board is hands on, not only governing the organization, but directly working within many of PPMD’s programs.

John Killian, Chairperson

John lives in Rockwall, Texas with his wife Stefanie and their children Abbie, Nick, Ben, Sam, and Sophie. Sam was diagnosed with Duchenne when he was three years old and he is currently 22.

John had a career in real estate investment, helping run a real estate investment fund for Clarion Partners. Retired from Clarion Partners since the end of 2023, he now helps with daily care for Sam and occasionally does real estate consulting work.

John has been a board member off and on since 2005 and is a former Chair of the Board, as well as current Chair. He has a focus on development and finance, also functioning previously as the treasurer and development chair for the PPMD executive committee. The Killian family has held an annual fundraiser call Sam’s Night (previously Sam’s Day) since 2005. John, Abbie, Nick, and Ben are also regular participants in the Race to End Duchenne events at the New York City Marathon and the DisneyWorld Marathon.

Alpa Khushalani, Vice Chairperson

Alpa lives in Fayetteville, GA with her husband Vishal, and three sons, Krishna, Eshan and Vihaan.  Alpa completed her Bachelors in Computer Science from Mumbai University, India and joined a global IT services firm and migrated to the US. Between 2005 to 2013, she was a client partner for several multi-million dollar engagements and managed projects spanning across US, EU and Asia. Her family has moved across the US living in AZ, NJ, NC, SC, IL and are now settled in GA.  In 2014, at the age of six years, their oldest son Krishna was diagnosed with DMD. Since then Alpa has been associated with PPMD and has successfully fundraised through Race to End Duchenne and Coach to Cure initiatives and organized local awareness events. Alpa is passionate about advocacy, building local DMD communities and expert standards of care. In 2017, she became the connect co-ordinator for Illinois and is now co-ordinator for the Georgia and South Carolina regions. She also serves on the advisory committee for certifying clinics as CDCC. In addition to volunteer work at PPMD, Alpa and her husband run a nonprofit school, Gurukulam that provides free education to 250+ underprivileged children from KG through 12th grade plus vocational training in Chennai, India.

Dawn Rezkalla, Treasurer

Dawn lives in Powell, Ohio with her husband Justin, daughter Madeline, and son Alex. Dawn completed her bachelor’s degree in business from Miami University in Oxford, Ohio, majoring in Accounting and Finance. She began her career in public accounting with Ernst & Young and went on to hold several leadership positions in Fortune 500 companies such as L Brands, Wendy’s, and Sysco. Dawn currently serves as Chief Financial Officer for a wholly owned subsidiary of Sysco.

Alex was diagnosed with Duchenne at the age of 4 in 2015. Since then, fundraising and advocacy have been a big part of Dawn’s personal journey with Duchenne. She and her husband created the Little Hercules Golf Classic, through which they have raised funds to contribute to Duchenne research at Nationwide Children’s Hospital and donated to PPMD campaigns. Dawn also served as a panelist for virtual PPMD presentations, met with House and Senate members at the advocacy conference, was featured in a continuing education video on brain impacts in Duchenne and has publicly testified in support of therapies for Duchenne patients.

Dawn is passionate about PPMD’s mission overall with a specific interest networking, fundraising, and policy changes so that we can offer more therapies to more patients as quickly as possible.

DeAnne Friar, Secretary

DeAnne lives in Grand Rapids, Michigan with her husband, Mike, and their two children Colleen and Kyle. Their middle son, Kevin, passed away in 2018 from Duchenne. Both Kevin and Kyle were diagnosed with Duchenne in 2004. DeAnne is a retired Speech-Language Pathologist after 27 years in the public school setting. She has been involved in PPMD’s Advocacy Conference in Washington DC and is currently a Connect Coordinator for the state of Michigan. The Friars have hosted numerous events to support PPMD including the Friar Fight Golf Outing and the GR.1K.

Sue Apkon, MD

Susan Apkon, MD is a Pediatric Rehabilitation Physician at Children’s Hospital Colorado/University of Colorado School of Medicine. She has provided care for boys and men with Duchenne since completing her residency in Pediatrics and Physical Medicine and Rehabilitation at University of Colorado/Children’s Colorado in 1999. Dr. Apkon is the Co-Director of the Neuromuscular Program and Co-directs the PPMD Certified Care Center at Children’s Colorado. She has served as a PI or Co-PI on numerous clinical trials focused on the care of boys with DMD. Over the last 20 years, Dr. Apkon has spoken on many different topics at the annual PPMD conference.

Maru Chapur

Bio coming soon

Timothy Cripe, MD, PhD

Timothy P. Cripe, MD, PhD, FAAP, is chief of the Division of Hematology and Oncology at Nationwide Children’s Hospital, a Gordon Teter Endowed Chair in Pediatric Cancer at Nationwide Children’s Hospital and a professor of pediatrics at The Ohio State University.

Dr. Cripe received his undergraduate degree in Biochemistry from Princeton University and his M.D. and Ph.D. in Genetics from the University of Iowa. He completed his pediatric residency training at the University of Iowa Children’s Hospital and his subspecialty fellowship training in pediatric hematology/oncology from Dana-Farber Cancer Institute/Children’s Hospital, Boston and the University of Colorado/Children’s Hospital, Denver. He was on faculty at the University of Wisconsin-Madison and Cincinnati Children’s Hospital prior to coming to Nationwide Children’s.

Michelle Furlong

Michelle has been active supporter of Parent Project Muscular Dystrophy since it was founded in 1994. As a Duchenne sibling and the daughter of PPMD’s Founding President Pat Furlong she has had the unique privilege of witnessing every challenge, every display of resilience, and every accomplishment this community has made together in the last three decades. Michelle joined the PPMD Board in 2023 and is passionate about preserving her mom’s legacy and commitment to this community.

Currently, Michelle is the Vice President of Human Resources, at HUB International, a leading North American insurance brokerage, where she specializes in strategic human resources leadership with an emphasis on performance management, talent development, culture and employee engagement.

Originally from Middletown, Ohio, Michelle began her HR career working at Standard Chartered Bank in New York and London, where she was the Global Head of HR Strategy. She returned home to Ohio in 2015 to open her own small business, a boutique yoga studio, before returning to her Human Resources Career. Michelle holds a Bachelor of Business Administration from The College of William & Mary and a Master of Arts Degree in Industrial/Organizational Psychology from New York University. Michelle also serves as a Member-at-Large on the Board of Directors of Girl Scouts of Western Ohio.

Michelle and her husband Jason are avid travelers with a long wish list of destinations. They currently live in Loveland, Ohio.

Susan Huang

Bio coming soon

Scott Perrin

Scott lives in Rockland County, New York with his wife and three children. His middle child, Luke, was diagnosed with Duchenne in 2021 at the age of 3. Luke participates in tee ball and Cub Scouts, while Scott serves as the tee ball coach and den leader.

Scott and his wife became involved with PPMD shortly after diagnosis. They are annual participants in the Advocacy Conference, Race to End Duchenne, and host the Perrin Power Golf Tournament as a PPMD DIY Event.

Professionally, Scott leads a team of scientific software engineers in Pfizer Digital supporting Vaccines Research & Development. Scott received his undergraduate degree in chemistry from the University of Connecticut and his Ph.D. in chemistry from Georgetown University. Prior to joining Pfizer, he was an Intramural Postdoctoral Research Fellow and Intramural AIDS Research Fellow at the National Heart, Lung and Blood Institute.

Member Emeritus

Linda Cripe, MD

Dr. Cripe is a professor of pediatrics and a pediatric cardiologist for The Heart Center. She is also a member of the physician team for the Neuromuscular Disorders section of The Neurosciences Center at Nationwide Children’s Hospital. Dr. Cripe completed her residency at the University of Iowa Hospitals and Clinics. She served as a pediatric cardiology fellow at the University of Iowa Hospitals and Clinics, and at Children’s Hospital Boston. Before coming to Nationwide Children’s, Dr. Cripe spent 12 years at Cincinnati Children’s Hospital Medical Center.

Dr. Cripe’s clinical interests focus on non-invasive cardiac imaging specifically echocardiography as well as on the care and treatment of cardiomyopathy associated with neuromuscular disease, such as Duchenne muscular dystrophy. She was a member of the Centers for Disease Control (CDC) National Steering Committee Duchenne Muscular Dystrophy Standards of Care, and has been an invited lecturer nationally and internationally on cardiomyopathy related to Duchenne.

David N. Hofstein

David lives in Philadelphia with his wife Gail. Their grandson, Henry Beyer, who was diagnosed with Duchenne in May 2017 at the age of 4, lives in Los Angeles with his parents Diana and Jon and his younger sister Lucy. David is the senior partner of the Philadelphia based domestic relations law firm of Hofstein Weiner & Meyer, PC. He is committed to doing whatever he can to help those being affected by Duchenne.

Lifetime Trustees

Howard Kaplan

Bio coming

Donna Saccomanno, Co-Founder

Donna is co-founder of PPMD and lives in Yonkers, NY. Her son Thomas passed away in 2024 from Duchenne. Donna is a Registered Nurse working in the health and wellness field of Integrative medicine, medical weight loss, and bioidentical hormone replacement. She also has background in pediatrics.