For Adults / Young Adults

PPMD’s Adult Advisory Committee (PAAC) amplifies the teen and adult voices of Duchenne, Becker, and carriers as an extension of Parent Project Muscular Dystrophy (PPMD). The PAAC takes a holistic approach to advocacy by addressing care, community, and quality of life. We work together to elevate the lives of individuals living with Duchenne and Becker through mentorship, outreach, and education.

What We Do

  • Hold monthly meetings to discuss concerns, interests, and strategic initiatives impacting the Duchenne community.
  • Communicate with members of Congress and their staffers about disability legislation.
  • Plan and implement Teen and Adult sessions at PPMD’s Annual Conference.
  • Hold bi-weekly virtual socials and game nights on the PAAC Discord.

Get Involved

Interested in joining the PAAC or learning more?

  • The PAAC is an open and inclusive group. We accept new members in September of each calendar year. To learn more about becoming a member, contact Patrick Moeschen, Director: pmoeschen@parentprojectmd.org.
  • The PAAC also welcomes those interested in lending their expertise, skills, or other resources to this group. To find out more or start a conversation about getting involved, contact Patrick Moeschen, Director: pmoeschen@parentprojectmd.org.

Connect with Us on Social

  • Join us on the PAAC’s Facebook Group, a safe and inclusive place for those with Duchenne and Becker to discuss topics, issues, and concerns related to the muscular dystrophy experience as well as a place to connect with other individuals.
  • We also have a Discord server and Instagram.

For Tweens

PPMD and the PAAC also host several social opportunities for tweens (individuals with Duchenne/Becker as well as carriers ages 9-14), including regular Virtual Socials and a Gaming Discord. Learn more.

PAAC Officer Board

President

Adith Thummalapalli

Vice President

Ravi Lipman

Secretary

DJ Kimble

Historian

Tyus Hill

Officer at Large

Adam Wechsler

Becker Officer

Nevin Steiner

PAAC Newsletter

As we welcome 2026, we are excited to announce that the PPMD Adult Advisory Committee (PAAC) has grown to 70 members strong. This group amplifies the teen and adult voices of Duchenne, and Becker. The PAAC takes a holistic approach to advocacy by addressing care, community, and quality of life. We work together to elevate the lives of individuals living with Duchenne and Becker through mentorship, You can also connect with us on outreach and education.

PAAC officer elections were recently held and we invite you to get to know our 2026 officers:

  • President – Adith Thummalapalli
  • Vice President – Ravi Lipman
  • Secretary – DJ Kimble
  • Historian – Tyus Hill
  • Officer at Large – Adam Wechsler
  • Becker Officer (New Position) – Nevin Steiner

Please visit the PPMD PAAC page to learn more about the officers, the group, and connect with us. We are always open to speaking with families and individuals living with duchenne and becker to offer expert advice, tips, and share our lived experiences. 

You can also connect with us on various social media platforms where you can ask us anything!