Current Action Alerts

NATIONAL:

Urge the Senate to Support the Give Kids a Chance Act and Reauthorize the Rare Pediatric Disease PRV Program

Our fight to reauthorize the Rare Pediatric Disease Priority Review Voucher (PRV) Program continues, and we urgently need your help. On December 1, 2025, the House of Representatives passed the Give Kids a Chance Act (H.R. 1262) with strong bipartisan support. Now, we need the Senate to follow suit by passing the companion bill, S. 932.

Click here to take action today!

STATES:

Illinois

Contact the state’s Senate Appropriations committee and urge them to support SB 2261 and include Duchenne newborn screening funding in the Illinois state budget. Click here to take action today!

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