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Advocate


advocacy

“Never believe that a few caring people can’t change the world. For, indeed that’s all who ever have.” -Margaret Mead

Welcome to Parent Project Muscular Dystrophy’s Advocacy Center. With over a decade invested in advocacy, our advocacy initiative helps families gain a sense of accomplishment and empowerment. We hope that you will take a moment to read about the history of PPMD’s advocacy efforts, our past successes, and what actions are currently needed.

Since our organized advocacy efforts began in 2000, the voice of the Duchenne community has helped to leverage over $500 million into muscular dystrophy research, with over $250 million of that for Duchenne-specific research. Our collective efforts have also helped to establish standards of care in Duchenne for the first time in history.

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Advocacy Matters



 

In this section

Action Alert
FDA Guidance
Putting Patients First
Our Advocacy History
MD Care Act
Advocacy Conference
Advocacy 101
Find Your Representatives

Connects
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How We Help



Our family-centered approach is at the heart of everything we do. Learn more.

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PPMD Sites

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Let's seize this moment.

  DAYS   HOURS   MINUTES   SECONDS
REMAINING!
 

There has never been so much momentum in the Duchenne community. Help us keep moving forward by donating to fund CRISPR/Cas9 gene‑editing technology. Every gift to PPMD is being doubled until we raise $250,000—but we have to reach this goal by 12/31!

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