Certified Duchenne Care Centers

Choose a Certified Care Center

Akron Children's Hospital

One Perkins Square
Akron, Ohio 44308

https://www.akronchildrens.org

Noelle Buso, LISW-S
Social Work Coordinator
330-543-6014

Ann and Robert H. Lurie Children's Hospital of Chicago

225 E. Chicago Avenue
Mailbox #51
Chicago, IL 60611
luriechildrens.org

Name: Meylin Rodriguez and Brian Reynoso

Title: Administrative Assistant Sr - Clinical and Academic

Phone number: 312-227-3550

 

Name: Molly Gallivan

Title: Clinical Research Coordinator III

Phone number: 312-227-3813

Arkansas Children's Hospital

1 Children's Way, Little Rock, Arkansas, 72202 

https://www.archildrens.org/

Name: Tiffany Boyd RN

Title: Neuromuscular Clinic Coordinator

Phone number: 501-364-1850

Billings Clinic

2800 10th Avenue N
Billings, MT 59107

Name: Lindsay Letendre

Title:MA

Phone number: 406-238-5770

Boston Children's Hospital

300 Longwood Avenue
Boston, Massachusetts 02115

www.childrenshospital.org

Contact: Anellys Preito 
Phone Number: 617-355-8235

 

Center for Duchenne Muscular Dystrophy at UCLA

300 Medical Plaza, Suite B200
Los Angeles, CA 90095
cdmd.ucla.edu

Name: CDMD clinic (Return patients)

Title: Front Desk

Phone number: 310-794-1195

Name: Moreno, Paola

Title: Admin Coordinator (Peds and Adult patients)

Children's Hospital of Los Angeles

4650 Sunset Blvd #82 Los Angeles, CA 90027 (mailing address)
chla.org

Name: Elvira Sanchez

Title: Medical Assistant/ Clinical Care Associate

Phone number: 323.361.4081.

Children's Hospital of Philadelphia

34th St. and Civic Center Blvd
Philadelphia, Pennsylvania 19104

Children's Hospital of Philadelphia is a Certified Duchenne Care Center with Clinical Research Designation

Robyn Ruggia/ Tiffany Fauntleroy:   215-590-4719

 

Children's Hospital of The King's Daughters

850 Southampton Avenue
Third Floor
Norfolk, VA 23510
www.chkd.org

Name: Tanicia Johnson, RN

Title: Specialty Program Coordinator

Phone number: 757-668-9729

Children's Hospital of Wisconsin

9000 W. Wisconsin Ave, Milwaukee, WI 53226

www.chw.org

Name: Claudia Krimmer

Title: Muscular Dystrophy Clinic Patient Care Coordinator/Scheduler

Phone number: (414) 607-5280 or (877) 607-5280.

Children’s Hospital Colorado

13123 East 16th Ave
Aurora, CO 80045
childrenscolorado.org

Name:  Maria Martinez

Title:  Administrative Service Coordinator

Phone number:  720-777-2806

Children’s Mercy Hospital

2401 Gillham Rd
Kansas City, MO 64108
www.childrensmercy.org

Heidi Lockridge 816-302-3387 

Children’s National Health System

111 Michigan Avenue NW, Washington, DC 20010

Name: Physical Medicine and Rehabilitation (PMR) Scheduling Line

Phone number: 202-476-3094

Cincinnati Children's Hospital Medical Center

3333 Burnet Ave
Cincinnati, OH 45229
 http://www.cincinnatichildrens.org/service/c/neuromuscular/default/

Name: Clinical Concierge

Phone number: 513-803-3000 option 1

Duchenne Muscular Dystrophy Clinic at Monroe Carell Jr. Children's Hospital at Vanderbilt

2200 Children's Way
Suite 5230 DOT
Nashville, TN 37232

615-875-8500

https://www.childrenshospitalvanderbilt.org/clinic/duchenne-muscular-dystrophy-dmd

Name: Kali Barbalena
Title: Program Coordinator
Phone number: 615-875-8500

Duke Children’s Hospital

3000 Erwin Road
Durham, NC 27710
www.dukemedicine.org

Name: Patricia Sexton

Title: RN

Phone number: 919-613-6832

Health Children's Hospital of Richmond VCU

1000 East Broad Street Richmond, VA 23298

https://www.vcuhealth.org/

Name 

Audrey Spradling, RN

Title 

Neuromuscular Nurse Clinic/Coordinator

Phone number 

804-828-2467 

Helen DeVos Pediatric Neurology Neuromuscular Clinic

35 Michigan NE, Ste 3003  Grand Rapids, MI 49503

www.helendevoschildrens.org/ 

Name: Natalie Rogers

Title: Nurse Coordinator

Phone number: 616-267-2500;  fax referral to 616-267-2501

Kennedy Krieger Institute

707 N. Broadway
Baltimore, MD 21205

Name: Angie Lasseth

Title: Clinic coordinator

Phone number: 443-923-9525

Lucile Packard Children’s Hospital at Stanford

730 Welch Road, Palo Alto, CA 94304

Name: LPCH Scheduling department

Phone number: 650-723-0993

Nationwide Children’s Hospital

700 Children's Dr
Columbus, OH 43205
nationwidechildrens.org

Name: Neuromuscular Admin Team

Phone number: 614-722-2203 option 3

Nemours Children's Hospital, Delaware

1600 Rockland Road, Wilmington, DE 19803 

Name: Willis Brown / Amanda Hopkins

Title: Coordinators

Phone number: 302-651-5930

Penn State Health Children's Hospital

500 University Drive
Hershey, PA 17033

Name: Olivia Wanner

Title: Scheduling Coordinator

Phone number:717-531-0003 ext 282193

Phoenix Children's

1919 E Thomas Road
Phoenix, Arizona 85016

www.phoenixchildrens.org

 

Name: Kelly Lucyk, RN

Title: Nurse Specialty Care Coordinator, Neuromuscular Program

Phone number: 602-933-0970

Riley Hospital for Children MDA/Neuromuscular Care Center

575 Riley Hospital Drive
MSA 1
Indianapolis, IN 46202D

https://www.rileychildrens.org/

 

Name:  Debbie Lemay RN        
Title:     Clinical Nurse Coordinator-Navigator
Phone number:  317 948-1313

Seattle Children's Hospital

4800 Sand Point Way NE
Seattle, WA 98105
seattlechildrens.org

Title: neuromuscular schedulers

Phone number: 206 987 6678

Stony Brook

100 Nicolls Road
Stony Brook, NY 11794
www.stonybrook.edu

Name: Kayla Vander Schuyt

Title: RN Coordinator

Phone number: 631-216-1985

The University of Rochester Medical Center

601 Elmwood Ave, Box 673, Rochester, NY 14642
https://www.urmc.rochester.edu/neurology/clinical-services/neuromuscular/clinics/duchenne-muscular-dystrophy-clinic.aspx

 

 Scheduling staff 585-275-2559

UC Davis Department of Physical Medicine and Rehabilitation Neuromuscular Disease Clinic

UC Davis Medical Center Department of Physical Med & Rehab
4860 Y Street, Suite 1700
Sacramento, CA 95817

916-734-7041

UC Davis Physical Medicine and Rehabilitation
916-734-7041

UCSF Benioff Children's Hospital Neuromuscular Clinic

1825 4th Street, 6A

San Francisco, CA 94158

Name: Marcie Cordova                                                              Name:  Raquel Guillen

Title: practice coordinator                                                          Title: new patient coordinator

Phone number: 415-514-2133                                                   Phone Number:  855-722-8273

University of Iowa Hospitals and Clinics

200 Hawkins Dr.
Iowa City, IA 52242

General scheduling center PH: 319-356-2229

University of Louisville/Norton Children's Hospital

231 E Chestnut Street
Louisville, Kentucky 40202

www.nortonchildrens.com

 

Name: Jackie Boyd

Title: Neuromuscular Nurse Navigator

Phone number: 502-494-9137

University of Utah Muscular Dystrophy Clinic, Primary Children’s Hospital Neuromuscular Clinic

175 N Medical Dr, Salt Lake City, UT 84132 

https://healthcare.utah.edu/neurosciences/neurology/muscular-dystrophy-clinic/

Coordinated Scheduling

Phone number: 801.587.0462

University of Virginia Children's Hospital

Battle Building, 1204 W. Main St., Charlottesville, VA 22908

https://childrens.uvahealth.com/services/developmental-disabilities-and-delays

Patient and Family Centered Scheduling, 434-924-0123

UPMC Children's Hospital of Pittsburgh

4401 Penn Avenue
Pittsburgh, PA 15224

www.chp.edu

 

Name: Josh Hamm

Title: RN

Phone number: 412-692-8259

UT Southwestern Medical Center and Children's Health

2350 Stemmons Frwy, Ste 5074
Dallas, Texas 75207

www.childrens.com

Name: Sandra Turner

Title: Scheduler

Phone number: 214-456-2768

UW Health- American Family Children’s Hospital

1675 Highland Ave

Madison, WI 53792

uwhealthkids.org

Name:  Hayley Lindsey, RN

Title:  Clinical RN Navigator

Phone number: 608-890-6500

Washington University at St. Louis Children's Hospital

One Children's Way
St. Louis, Missouri 63110

www.stlouischildrens.org

 

Name: Neuromuscular Office

Phone number:314-362-6981

Yale Pediatric Neuromuscular Program

1 Long Wharf Drive
2nd Floor, Pediatric Specialty Clinic
New Haven, CT 06510
https://www.ynhh.org/childrens-hospital/find-a-location.aspx

Name:  Louise Lanouette

Title:  RN

Phone number: 203-688-4221