Want to be part of history? Want to contribute to future progress in understanding, diagnosing, and treating Duchenne?
REGISTER FOR PPMD’S 2025 ADVOCACY CONFERENCE, MARCH 9-11
Register NowEach year, PPMD ensures that the Duchenne community is at the forefront of the hearts and minds of Congressional leaders and champions in Washington, DC by convening our annual Advocacy Conference at the start of the annual Appropriations season. These efforts help to ensure that — while Duchenne may be a rare disease — we are central to the considerations of policy makers.
Over the last 23 years, Duchenne Advocacy has resulted in…
- Over $850 million in funding for Duchenne related programs at the National Institutes of Health, Center for Disease Control, and Department of Defense.
- A standard of care established and recently updated for all those diagnosed with Duchenne, which has markedly improved the quality of life and extended lifespan.
- An ever-growing Duchenne drug development pipeline with over 40 companies developing drugs for Duchenne.
Contact lauren@parentprojectmd.org with any questions.
Travel Assistance
PPMD and Kindness Over Muscular Dystrophy (KOMD) are collaborating to offer a limited number of need-based travel scholarships. These scholarships are available for up to two individuals to attend PPMD’s Advocacy Conference, held March 9-11, 2025, in Washington, DC. To apply, please complete the application. Scholarships are limited and the deadline to apply is February 12, 2025.
