New York State Providers

New York State Public Health Law and Regulations require samples that are collected from patients within New York State be tested by a clinical laboratory that holds proper New York licensing. Due to the rarity of many genetic conditions, laboratories may not hold proper licensing for all testing options available.

We currently utilize EGL Genetics for testing in New York State. To order testing through Decode Duchenne in New York State, please click here to complete an application. Once the application is approved, we will send you the necessary forms for testing through EGL Genetics.

New York State Application >


Contact a Decode Duchenne Genetic Counselor >



Decode Duchenne is administered by Parent Project Muscular Dystrophy and The Duchenne Registry. Decode Duchenne is sponsored by Sarepta Therapeutics and PTC Therapeutics. Click here to review PPMD’s policy on corporate support.