Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
If you have Duchenne or Becker muscular dystrophy or if you are a female carrier of Duchenne or Becker, join The Duchenne Registry and your data will help fuel the fight to end Duchenne. Your anonymous Registry data is shared with researchers to speed the development of new therapies.
Join The RegistryWelcome back! We are so excited to host PPMD’s 2022 Annual Conference, June 23-26 at The Phoenician in Scottsdale, AZ as both an in-person and virtual hybrid event this year.
Register
Race to End Duchenne is Parent Project Muscular Dystrophy’s signature program that raises funds to support our mission to end Duchenne muscular dystrophy, a fatal genetic disorder that slowly robs people of their muscle strength.
Join the Race
Every single person living with Duchenne deserves the best care possible. PPMD’s Certified Duchenne Care Center Program helps to ensure that centers comply with the standards of care and services for Duchenne.
Find a Care Center
During this unprecedented time, keeping up with the latest news from federal and local governments is overwhelming. PPMD is here to help you navigate this uncertainty. Visit our COVID-19 Information Center to stay on top of the latest information regarding COVID-19 and precautions you should take if you have Duchenne.
Read the latest
