Luke's Ice House TX Fundraiser


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Kaitlyn Wilson

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Please join us in our fight to end Duchenne at Luke's Icehouse in Houston!

Date: May 6, 2017

Location: Luke's Icehouse, 903 Durham Dr, Houston TX

Time: 2-5 PM

About Duchenne
Duchenne is a devastating, progressive muscle-wasting disorder that slowly robs those diagnosed of their independence and eventually their life. Duchenne is the most common lethal genetic childhood disorder, affecting one in 3,500 boys worldwide. It knows no boundaries and crosses into all cultures and races. Boys with Duchenne typically lose the ability to walk between the ages of 10 and 14. By their late teens, they lose most of their upper body strength, including the ability to move their arms. They need respiratory support at night during their teenage years. Over time, their respiratory systems weaken, and they require more constant support. Most boys typically survive only into their early twenties, losing their battle to Duchenne due to pulmonary and respiratory failure. To date, there is no known cure for Duchenne.

About Parent Project Muscular Dystrophy
Founded by parents of children with DMD, Parent Project Muscular Dystrophy (PPMD) is an internationally recognized leader in advocating muscular dystrophy research. (tax ID: 31-1405490) PPMD has made great strides in the Duchenne community by funding high impact research, fighting to create standards of care, and providing up-to-date information to families regarding Duchenne treatment and care. It is the largest grassroots organization that is entirely focused on Duchenne and the well being of those affected.  For more information, visit http://www.parentprojectmd.org.

 

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