Spaghetti Arms Fundraiser


Support Sean!

Spaghetti Arms

89 percent of goal achieved.

Goal: $30,000.00
Achieved: $26,595.68

Mission

To provide peers with the knowledge of Duchenne Muscular Dystrophy & to help fund Parent Project Muscular Dystrophy.

Upcoming Fundraisers

            C&O Canal 100 - On April 29th Allan Darrow will be running 100 miles to raise awareness of Duchenne Muscular Dystrophy for his friend Sean Quigg in the 2017 C&O Canal foot race to benefit PPMD. Any love and support for this cause would be greatly appreciated and help Allan power through to mile 100. Every donation will go towards accelerating research, getting our voices heard in Washington, demanding optimal care for all young men, and educating the global community. Any amount helps. 

For more info on Allans race - cocanal100.com

For more info about DMD - parentprojectmd.org

Thank you for your consideration in supporting Allan and our cause to END DMD



           Wheels for Wheels 2017 -

Money raised at this event will go towards the purchase of an accessible vehicle for someone in need.

Pre-register @ wheelsforwheels.com to reserve a spot

 

About Duchenne

About Duchenne
Duchenne muscular dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births (about 20,000 new cases each year). Because the Duchenne gene is found on the X-chromosome, it primarily affects boys; however, it occurs across all races and cultures.
Duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin. Because dystrophin is absent, the muscle cells are easily damaged. The progressive muscle weakness leads to serious medical problems, particularly issues relating to the heart and lungs. Young men with Duchenne typically live into their late twenties.
Becker muscular dystrophy, which is less severe than Duchenne, occurs when dystrophin is manufactured, but not in the normal form or amount. Because of this disparity in the severity of the different forms of these disorders, we will refer primarily to Duchenne throughout this site.
Duchenne can be passed from parent to child, but approximately 35% of cases occur because of a random spontaneous mutation. In other words, it can affect anyone. Although there are medical treatments that may help slow its progression, there is currently no cure for Duchenne.


Contact

Email
Quiggs@spaghettiarms.org


Phone
203-885-9726

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