News Update

Upcoming Webinar: Orthopedic Complications in Duchenne

To address the issues of contractures, scoliosis, and fractures, we have elicited the assistance of three experts to join us for a webinar on Tuesday, March 31st, 1:00-2:00 EDT.
March 25, 2015 | Learn more 

News Update

Recapping the FDA-NIH Dystrophin Methodology Workshop

PPMD CEO, Dr. John Porter, recaps the FDA and NIH dystrophin methodology workshop. This was an important moment for the Duchenne community and PPMD was honored to be a part of it. Thank you to all the families who came to the meeting.
March 21, 2015 | Learn more 

News Update

PPMD Participating in FDA-NIH Dystrophin Methodology Meeting on Friday, March 20

PPMD is grateful that the FDA and NIH are willing to discuss dystrophin and have opened their doors to include our community leaders. If you would like to attend Friday’s public scientific workshop, or watch a live stream of the meeting, view details here.
March 18, 2015 | Learn more 

News Update - eNews

End Duchenne eNews: Prepare to Connect

Catch up on the latest research and community updates in this month's End Duchenne eNews!
March 17, 2015 | Learn more 

News Update

Dollars Destroying Duchenne

PPMD loves creative, out-of-the-box fundraisers that raise awareness. This new, annual event from Davenport, FL is a great example of something you can do in your community. Read organizer Diana Rodriguez’s story and don’t hesitate to reach out to us with your own ideas! 
March 17, 2015 | Learn more 

News Update

PPMD's 2015 Connect Conference Registration Open

This year, 2015, marks our 21st Connect Conference. With the Duchenne landscape changing in so many ways, this year's meeting will help you understand the nuances of Duchenne including the latest in research and care, open communication channels between thought leaders in the field, and lay the groundwork for future collaborations.
March 16, 2015 | Join us June 18-21, 2015 in Washington, DC. 

News Update

Spring Forward: Bringing the MD-CARE Act to Life

After months of outreach to congressional champions and visits to Capitol Hill, the MD-CARE Act Amendments were passed and signed into law in the end of 2014. Now the real work of implementation actually begins. On Tuesday, March 17, the MDCC will be taking the first formal step to bring the MD-CARE Act Amendments to life and our community will officially Spring forward!
March 14, 2015 | Learn more 

News Update

What is Epicatechin?

Epicatechin. It’s a word that is starting to pop up more and more in the Duchenne community. But was is it? PPMD helps explain this exciting potential therapy now in the early stages of development.
March 13, 2015 | Learn more 

Recall Notice for Deflazacort 30mg

If you receive this recall notice and/or think that you may have an affected batch (J021 [expiry 30/06/2017] or J028 [expiry 30/09/2017]), you should contact your provider and ask them to replace it with a prescription for prednisone to take until you get your new batches of deflazacort. Do not take deflazacort that is part of the affected batch. As more information becomes available, we will share it with the community immediately. If you have any further questions call your neuromuscular provider.
March 12, 2015 | Learn more 

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